All Recent Publications by Network Members

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Aryee, E.Perrin, J. M., Iannuzzi, D., Kuhlthau, K. A., & Oreskovic, N. M. (2022). Association of Neighborhood Characteristics With Pediatric AsthmaAcademic pediatrics, S1876-2859(22)00002-X. Advance online publication.

Bayer ND, Hall M, Li Y, Feinstein JA, Thomson J, Berry JG. Trends in Health Care Use and Spending for Young Children With Neurologic Impairment. Pediatrics. 2022 Jan 1


Pulcini, Christian D. MD, MED, MPH∗; Coller, Ryan J. MD, MPH†; Macy, Michelle L. MD, MS‡; Alpern, Elizabeth MD‡; Harris, Debbi MA, MS§; Rodean, Jonathan MPP∥; Hall, Matt PhD∥,¶; Chung, Paul J. MD, MS#; Berry, Jay G. MD, MPH∗∗. Low-Resource Emergency Department Visits for Children With Complex Chronic Conditions. Pediatric Emergency Care

Sobotka SA, Hall DE, Thurm C, Gay J, Berry JG. Home Health Care Utilization in Children With Medicaid. Pediatrics.


Foster CC, Shaunfield S, Black LE, Labellarte PZ, Davis MM. Improving Support for Care at Home: Parental Needs and Preferences When Caring for Children with Medical Complexity. Journal of Pediatric Health Care.

Hall, M., Attard, T. M., & Berry, J. G. (2022). Improving Cohort Definitions in Research Using Hospital Administrative Databases-Do We Need Guidelines? JAMA pediatrics, 10.1001/jamapediatrics.2022.0091. Advance online publication.

Okumura, M. J.Kuo, D. Z., Ware, A. N., Cyr, M. H., & White, P. H. (2022). Improving Health Care Transitions for Children and Youth With Special Health Care Needs. Academic pediatrics22(2S), S7–S13.

Ming, D. Y., Li, T., Ross, M. H., Frush, J., He, J., Goldstein, B. A., Jarrett, V., Krohl, N., Docherty, S. L., Turley, C. B., & Bosworth, H. B. (2022). Feasibility of Post-hospitalization Telemedicine Video Visits for Children With Medical Complexity. Journal of pediatric health care : official publication of National Association of Pediatric Nurse Associates & Practitioners36(2), e22–e35.

Kuo, D. Z., Comeau, M., Perrin, J. M., Coleman, C., White, P., Lerner, C., & Stille, C. J. (2022). Moving From Spending to Investment: A Research Agenda for Improving Health Care Financing for Children and Youth With Special Health Care Needs. Academic Pediatrics22(2S), S47–S53.


Thomson, J., Butts, B., Camara, S., Rasnick, E., Brokamp, C., Heyd, C., Steuart, R., Callahan, S., Taylor, S., & Beck, A. F. (2022). Neighborhood Socioeconomic Deprivation and Health Care Utilization of Medically Complex Children. Pediatrics149(4), e2021052592.


Coller RJ, Lerner CF, Chung PJ, Klitzner TS, Cushing CC, Warner G, Nacht CL, Thompson LR, Eickhoff J, Ehlenbach ML, Garrity BM, Bowe T, Berry JG. Caregiving and Confidence to Avoid Hospitalization for Children with Medical Complexity. J Pediatr.


Carter K, Blakely C, Zuk J, Brittan M, Foster C. Employing Family Caregivers: An Innovative Health Care Model. Pediatrics.


Garrity BM, Perrin JM, Rodean J, Houtrow AJ, Shelton C, Stille C, McLellan S, Coleman C, Mann M, Kuhlthau K, Desmarais A, Berry JG. Annual Days With a Health Care Encounter for Children and Youth Enrolled in Medicaid: A Multistate Analysis. Acad Pediatr.


Jenkins AM, Berry JG, Perrin JM, Kuhlthau K, Hall M, Dunbar P, Hoover C, Garrity B, Crossman M, Auger K. What Types of Hospitals Do Adolescents and Young Adults With Complex Chronic Conditions Use? Acad Pediatr. 2022



Dickter, C. L., Burk, J. A., Anthony, L. G., Robertson, H. A., Verbalis, A., Seese, S., Myrick, Y., & Anthony, B. J. (2021). Assessment of Sesame Street online autism resources: Impacts on parental implicit and explicit attitudes toward children with autism. Autism25(1), 114–124.

Parente, V., Parnell, L., Childers J., Spears, T., Jarrett, V., Ming, D. (2021). Point-of-Care Complexity Screening Algorithm to Identify Children With Medical Complexity. Hospital Pediatrics11(1), 44–51.

Sheth, A., Agrawal, R. (2021). Trends in Pediatric Private Insurance and Medicaid Spending: A Repeated Cross-Sectional Analysis of Data from 2002 to 2014. Inquiry : a journal of medical care organization, provision and financing58, 469580211010433.

Pruitt, D. W., Zigler, C. K., Massagli, T. L., Houtrow, A. J. (2021). Assessing the Field of Pediatric Rehabilitation Medicine’s Interest in Expanding Fellowship Training to PediatriciansPM & R : The Journal of Injury, Function, and Rehabilitation, 10.1002/pmrj.12549. Advance online publication.

Hassinger, A., Lail, J. (2021). PANDEMIC IS DECLARED: Early Experience from Families of Children with Medical Complexity during SARS-COV-2 Lockdown: Information to Drive System Change. Complex Care Journal, 2.

Thomson, J., Hall, M., Nelson, K., Flores, J. C., Garrity, B., DeCourcey, D. D., Agrawal, R., Goodman, D. M., Feinstein, J. A.Coller, R. J., Cohen, E., Kuo, D. Z., Antoon, J. W., Houtrow, A. J.Bastianelli, L., & Berry, J. G. (2021). Timing of Co-occurring Chronic Conditions in Children With Neurologic Impairment. Pediatrics, 147(2).

Schor, E. L. (2021). Life Course Health Development in Pediatric PracticePediatrics147(1).

Mosquera, R. A., Avritscher, E., Pedroza, C., Bell, C. S., Samuels, C. L., Harris, T. S., Eapen, J. C., Yadav, A., Poe, M., Parlar-Chun, R. L., Berry, J., & Tyson, J. E. (2021). Hospital Consultation From Outpatient Clinicians for Medically Complex Children: A Randomized Clinical Trial.JAMA pediatrics175(1), e205026.


Pulcini, C. D., Coller, R. J., Macy, M. L., Alpern, E., Harris, D., Rodean, J., Hall, M., Chung, P. J., & Berry, J. G. (2022). Low-Resource Emergency Department Visits for Children With Complex Chronic Conditions. Pediatric emergency care38(2), e856–e862.

Loe, I. M., Kakar, P. A., & Sanders, L. M. (2021). Diagnosis, Evaluation, and Treatment of Attention-Deficit/Hyperactivity Disorder. JAMA pediatrics175(2), 191–192.

Yu, J. A., McKernan, G., Hagerman, T., Schenker, Y., & Houtrow, A. (2021). Most Children With Medical Complexity Do Not Receive Care in Well-Functioning Health Care Systems. Hospital pediatrics11(2), 183–191.

Yu, J. A., McKernan, G., Hagerman, T., Schenker, Y., & Houtrow, A. (2021). Identifying Children With Medical Complexity From the National Survey of Children’s Health Combined 2016-17 Data Set. Hospital pediatrics11(2), 192–197.

De Jesús-Rojas, W., Reyes-De Jesús, D., Mosquera, R. A. (2021). Primary Ciliary Dyskinesia Diagnostic Challenges: Understanding the Clinical Phenotype of the Puerto Rican RSPH4A Founder Mutation. Diagnostics11(2), 281.

Yu, J. A., McKernan, G., Hagerman, T., Schenker, Y., Houtrow, A. (2021). Most Children With Medical Complexity Do Not Receive Care in Well-Functioning Health Care Systems. Hospital Pediatrics11(2), 183–191.

Yu, J. A., McKernan, G., Hagerman, T., Schenker, Y., Houtrow, A. (2021). Identifying Children With Medical Complexity From the National Survey of Children’s Health Combined 2016-17 Data Set. Hospital pediatrics11(2), 192–197.

Houtrow, A. J., MacPherson, C., Jackson-Coty, J., Rivera, M., Flynn, L., Burrows, P. K., Adzick, N. S., Fletcher, J., Gupta, N., Howell, L. J., Brock, J. W., Lee, H., Walker, W. O., & Thom, E. A. (2021). Prenatal Repair and Physical Functioning Among Children With Myelomeningocele: A Secondary Analysis of a Randomized Clinical Trial. JAMA Pediatrics175(4), e205674.

Berry, J. G., Difazio, R. L., Melvin, P., Glader, L., Casto, E., Shore, J. B. (2021). Hospital Resource Use After Hip Reconstruction Surgery in Children With Neurological Complex Chronic Conditions. Developmental Medicine & Child Neurology, 63(2), 204-210. doi:


Glassman, J., Humphreys, K., Yeung, S., Smith, M., Jauregui, A., Milstein, A., & Sanders, L. (2021). Parents’ Perspectives on Using Artificial Intelligence to Reduce Technology Interference During Early Childhood: Cross-sectional Online Survey. Journal of medical Internet research23(3), e19461.

Lin, J. L., Rigdon, J., Van Haren, K., Buu, M., Saynina, O., Bhattacharya, J., Owens, D. K., & Sanders, L. M. (2021). Gastrostomy Tubes Placed in Children With Neurologic Impairment: Associated Morbidity and Mortality. Journal of child neurology36(9), 727–734.

Iannuzzi, D., Hall, M., Oreskovic, N. M., Aryee, E., Broder-Fingert, S., Perrin, J. M., & Kuhlthau, K. A. (2022). Emergency Department Utilization of Adolescents and Young Adults with Autism Spectrum Disorder. Journal of autism and developmental disorders52(2), 617–622.

Iannuzzi, D., Hall, M., Oreskovic, N. M., Aryee, E., Broder-Fingert, S., Perrin, J. M., & Kuhlthau, K. A. (2022). Emergency Department Utilization of Adolescents and Young Adults with Autism Spectrum Disorder. Journal of autism and developmental disorders52(2), 617–622.

Ilango, S. M., Lebrun-Harris, L. A., Jones, J. R., McManus, M. A., Cyr, M., Mann, M. Y., McLellan, S. B., & White, P. H. (2021). Associations Between Health Care Transition Preparation Among Youth in the US and Other Components of a Well-Functioning System of Services. Journal of Adolescent Health

Iannuzzi, D., Hall, M., Oreskovic, N. M., Aryee, E., Broder-Fingert, S., Perrin, J. M., & Kuhlthau, K. A. (2021). Emergency Department Utilization of Adolescents and Young Adults with Autism Spectrum Disorder. Journal of autism and developmental disorders, 10.1007/s10803-021-04969-y. Advance online publication.

Ilango, S. M., Lebrun-Harris, L. A., Jones, J. R., McManus, M. A., Cyr, M., Mann, M. Y., McLellan, S. B., & White, P. H. (2021). Associations Between Health Care Transition Preparation Among Youth in the US and Other Components of a Well-Functioning System of Services. The Journal of adolescent health : official publication of the Society for Adolescent Medicine, S1054-139X(21)00017-3. Advance online publication.

Kelly, M. M., Smith, C. A., Hoonakker, P., Nacht, C. L., Dean, S. M., Sklansky, D. J., Smith, W., Moreno, M. A., Thurber, A. S., & Coller, R. J. (2021). Stakeholder Perspectives in Anticipation of Sharing Physicians’ Notes With Parents of Hospitalized Children. Academic pediatrics21(2), 259–264.

Ferrari, L., Leahy, I., Staffa, S., Berry, J G. (2021). The Pediatric-Specific American Society of Anesthesiologists Physical Status Score: A Multicenter Study. Anesthesia & Analgesia132, 807-817.

Markham, J. L., Hall, M., Goldman, J. L., Bettenhausen, J. L., Gay, J. C., Feinstein, J., Simmons, J., Doupnik, S. K., & Berry, J. G. (2021). Readmissions Following Hospitalization for Infection in Children With or Without Medical ComplexityJournal of Hospital mMedicine16(3), 134–141.

Coller, R. J.Lerner, C. F.Berry, J. G., Klitzner, T. S., Allshouse, C., Warner, G., Nacht, C. L., Thompson, L. R., Eickhoff, J., Ehlenbach, M. L., Bonilla, A. J., Venegas, M., Garrity, B. M., Casto, E., Bowe, T., & Chung, P. J. (2021). Linking Parent Confidence and Hospitalization through Mobile Health: A Multisite Pilot Study. The Journal of Pediatrics230, 207-214.e1.

Schor, E. L. (2021). Developing a Structure of Essential Services for a Child and Adolescent Mental Health System. The Milbank Quarterly99(1), 62–90.

Berry, J. G., Hall, M., Cohen, E., Feudtner, C., Chiang, V. W., Chung, P. J., Gay, J. C., Shah, S. S., Casto, E., & Richardson, T. (2021). Hospitals’ Diversity of Diagnosis Groups and Associated Costs of Care. Pediatrics147(3).


Kaundinya, T., & Agrawal, R. (2022). Unpacking a Telemedical Takeover: Recommendations for Improving the Sustainability and Usage of Telemedicine Post-COVID-19. Quality management in health care31(2), 68–73.

Sholas, M. G., Apkon, S. D., & Houtrow, A. J. (2021). Children With Disabilities Must Be More Than an Afterthought in School Reopening. JAMA pediatrics175(4), 423–424.

Gill, P. J., Mahant, S., Hall, M., & Berry, J. G. (2021). Reasons for Admissions to US Children’s Hospitals During the COVID-19 Pandemic. JAMA325(16), 1676–1679.

Hein, R., Agrawal, R. (2021). Neonate with a limp arm. Journal of Paediatrics and Child Health, 10.1111/jpc.15493. Advance online publication.

Sholas, M. G., Apkon, S. D., Houtrow, A. J. (2021). Children With Disabilities Must Be More Than an Afterthought in School Reopening. JAMA pediatrics175(4), 423–424.

Moran, C. J., Aryee, E., Perrin, J. M. (2021). Adolescents with Inflammatory Bowel Disease Have Decreased Rates of Health Maintenance Visits. Journal of Pediatric Gastroenterology and Nutrition, 10.1097/MPG.0000000000003155. Advance online publication.

Gill, P. J., Mahant, S., Hall, M., Berry, J. G. (2021). Reasons for Admissions to US Children’s Hospitals During the Covid-19 Pandemic. JAMAm 325(16), 1676–1679. doi:10.1001/jama.2021.4382

Synhorst, D. , Bettenhausen, J. , Hall, M. , Thurm, C. , Shah, S. , Auger, K. , Williams, D. , Morse, R. , Berry, J. G. (2021). Healthcare Encounter and Financial Impact of COVID-19 on Children’s Hospitals. Journal of Hospital Medicine, 16 (4), 223-226. doi: 10.12788/jhm.3572.

Lindly O. J., Chan, J., Fenning, R. M., Farmer, J. G., Neumeyer, A. M., Wang, P., Swanson, M., Parker, R. A., Kuhlthau, K. A. (2021). Vision Care Among School-Aged Children with Autism Spectrum Disorder in North America: Findings from the Autism Treatment Network Registry Call-Back Study. Autism, 25(3), 840-853. doi:


Townley Flores, C., Gerstein, A., Phibbs, C. S., & Sanders, L. M. (2021). Short-Term and Long-Term Educational Outcomes of Infants Born Moderately and Late Preterm. The Journal of pediatrics232, 31–37.e2.

Barton, H. J., Coller, R. J., Loganathar, S., Singhe, N., Ehlenbach, M. L., Katz, B., Warner, G., Kelly, M. M., & Werner, N. E. (2021). Medical Device Workarounds in Providing Care for Children With Medical Complexity in the HomePediatrics147(5), e2020019513.

Barton, H. J., Coller, R. J., Loganathar, S., Singhe, N., Ehlenbach, M. L., Katz, B., Warner, G., Kelly, M. M., & Werner, N. E. (2021). Medical Device Workarounds in Providing Care for Children With Medical Complexity in the Home. Pediatrics147(5), e2020019513.

Lindly, O. J., Nasol, E., Tarazi, C. L., Chavez, A. E., Zuckerman, K. E. (2021). Toward Equitable Health Outcomes for Diverse Children With ADHD and Their Families. Academic Pediatrics, 21(4), 617-619.  

Murphy, N. A., Darro, N. (2021). Parents of Children With Medical Complexity are Essential Health Care Personnel. Pediatrics, 147(5), e2021050160. doi:

Sanders, L. M., Perrin, E. M., Yin, H. S., Delamater, A. M., Flower, K. B., Bian, A., Schildcrout, J. S., Rothman, R. L., & Greenlight Study Team (2021). A Health-Literacy Intervention for Early Childhood Obesity Prevention: A Cluster-Randomized Controlled Trial. Pediatrics147(5).

Ames, S. G., Alessi, L. J., Chrisman, M., Stanger, M., Corboy, D., Sinha, A., & Fink, E. L. (2021). Development and Implementation of Pediatric ICU-based Mobility Guidelines: A Quality Improvement Initiative.Pediatric quality & safety6(3), e414.


Flores-Oria, C. A., Saturno, E., Ramanathan, S., Martinez Castillo, D. J., Kumar, R., Ferrer, N., Mossaad, A., Tellez, M. E., Jon, C., Waters, S. C., & Mosquera, R. A. (2021). Intravenous immunoglobulin as adjuvant therapy for COVID-19: A case report and literature review. SAGE open medical case reports9, 2050313X211029699.

Shovers, S. M. , Bachman, S. S. , Popek, L., Turchi, R. M. (2021). Maternal postpartum depression: risk factors, impacts, and interventions for the NICU and beyond.Current Opinion in Pediatrics, 33 (3), 331-341. doi: 10.1097/MOP.0000000000001011.

Schor, E. L., Johnson, K. (2021). Child Health Inequities Among State Medicaid Programs. JAMA Pediatrics, Published online June 21, 2021. doi: 10.1001/jamapediatrics.2021.1082


Hoffmann, J. A., Hall, M., Lorenz, D., & Berry, J. G. (2021). Emergency Department Visits for Suicidal Ideation and Self-Harm in Rural and Urban Youths. The Journal of pediatrics238, 282–289.e1.

Nelson, K. E., Chakravarti, V., Diskin, C., Thomson, J., Cohen, E., Mahant, S., Feudtner, C., Widger, K., Pullenayegum, E., Berry, J. G., & Feinstein, J. A. (2021). Validation of Neurologic Impairment Diagnosis Codes as Signifying Documented Functional Impairment in Hospitalized Children. Academic pediatrics, S1876-2859(21)00376-4. Advance online publication.

Elango, S., Whitmire, R., Kim, J., Berhane, Z., Davis, R., & Turchi, R. M. (2022). Family Experience of Caregiver Burden and Health Care Usage in a Statewide Medical Home Program. Academic pediatrics22(1), 116–124.

deJong, N. A., Wofford, M., Song, P. H., Kappelman, M. D. (2021). Association of Care Coordination Experience and Health Services Use with Main Provider Type for Children with Inflammatory Bowel Disease. The Journal of Pediatrics, 234, 142-148.e1. doi:

Houtrow, A., Elias, E. R., Davis, B. E., & COUNCIL ON CHILDREN WITH DISABILITIES (2021). Promoting Healthy Sexuality for Children and Adolescents With Disabilities. Pediatrics148(1), e2021052043.

Houtrow A. (2021). A Tribute to Margaret Grace Stineman, MD. American journal of physical medicine & rehabilitation100(7), 625–626.


Barreda, C. B., Ehlenbach, M. L., Nackers, A., Kelly, M. M., Shadman, K. A., Sklansky, D. J., Edmonson, M. B., Zhao, Q., Warner, G., & Coller, R. J. (2021). Complex Care Program Enrollment and Change in ED and Hospital Visits from Medical Device Complications. Pediatric quality & safety6(5), e450.

Moran, C. J., Aryee, E., & Perrin, J. M. (2021). Adolescents With Inflammatory Bowel Disease Have Decreased Rates of Health Maintenance Visits. Journal of pediatric gastroenterology and nutrition73(2), 247–250.

Lindly, O., Eaves, M. C., Xu, Y., Tarazi, C. L., Rao, S. R., & Kuhlthau, K. A. (2022). Therapy use for U.S. school-aged children with developmental disabilities: State variation and determinants. Disability and health journal15(1), 101198.

Lindly, O. J., Cabral, J., Mohammed, R., Garber, I., Mistry, K. B., & Kuhlthau, K. A. (2021). “I Don’t Do Much Without Researching Things Myself”: A Mixed Methods Study Exploring the Role of Parent Health Literacy in Autism Services Use for Young Children. Journal of autism and developmental disorders, 10.1007/s10803-021-05240-0. Advance online publication.


Schor, E. L., & Bergman, D. (2021). Pediatric Preventive Care: Population Health and Individualized Care. Pediatrics148(3), e2020049877.

Mosquera, R. A., Avritscher, E., Pedroza, C., Lee, K. H., Ramanathan, S., Harris, T. S., Eapen, J. C., Yadav, A., Caldas-Vasquez, M., Poe, M., Martinez Castillo, D. J., Harting, M. T., Ottosen, M. J., Gonzalez, T., & Tyson, J. E. (2021). Telemedicine for Children With Medical Complexity: A Randomized Clinical Trial. Pediatrics148(3), e2021050400.

VonAchen, P., Gaur, D., Wickremasinghe, W., Hall, M., Goodman, D. M., Agrawal, R., & Berry, J. G. (2021). Assessment of Underpayment for Inpatient Care at Children’s Hospitals. JAMA pediatrics175(9), 972–974.

Guerrero, A. D., Biely, C., Dudovitz, R., Coker, T., Iyer, S., Barnert, E., Szilagyi, P., Szilagyi, M., & ChungP. J. (2021). Measurement and Identification of Parenting Behaviors Associated with Social-Emotional Outcomes in Children: The Racial and Cultural Appropriateness of a Commonly Used Parenting Measure. Journal of developmental and behavioral pediatrics : JDBP42(7), 524–531.

Yu, J., & Houtrow, A. J. (2021). Moving Pediatric Complex Care Forward: Big Data and National Research Collaborations. Pediatrics148(3), e2021051833.

Sandhu, S., deJong, N. A., & Ming, D. Y. (2021). Strategies for Reimagining Complex Care. Journal of general internal medicine36(9), 2856–2857.

Reid, H. W., Moorthy, G., Clark, D., Cannon, L., & Ming, D. Y. (2021). A Big Headache: An Unusual Case of Hypertensive Urgency in an Adolescent. Clinical pediatrics60(9-10), 427–431.

Glader, L., Comeau, M., & Sanders, L. (2021). Addressing Parent Employment as an Essential Issue in Child Health. Pediatrics148(3), e2021050448.

Stehouwer, N., Sawaya, A., Shaniuk, P., & White, P. (2021). Consultation Needs for Young Adults with Intellectual and Developmental Disabilities Admitted to an Adult Tertiary Care Hospital: Implications for Inpatient Practice. Journal of pediatric nursing60, 288–292.

Ilango, S. M., Lebrun-Harris, L. A., Jones, J. R., McManus, M. A., Cyr, M., Mann, M. Y., McLellan, S. B., & White, P. H. (2021). Associations Between Health Care Transition Preparation Among Youth in the U.S. and Other Components of a Well-Functioning System of Services. The Journal of adolescent health : official publication of the Society for Adolescent Medicine69(3), 414–423.

Schor, E. L., & Bergman, D. (2021). Pediatric Preventive Care: Population Health and Individualized Care. Pediatrics148(3), e2020049877.

Mosquera, R. A., Avritscher, E., Pedroza, C., Lee, K. H., Ramanathan, S., Harris, T. S., Eapen, J. C., Yadav, A., Caldas-Vasquez, M., Poe, M., Martinez Castillo, D. J., Harting, M. T., Ottosen, M. J., Gonzalez, T., & Tyson, J. E. (2021). Telemedicine for Children With Medical Complexity: A Randomized Clinical Trial. Pediatrics148(3), e2021050400.


Lindly, O. J., Shui, A. M., Stotts, N. M., & Kuhlthau, K. A. (2021). Caregiver strain among North American parents of children from the Autism Treatment Network Registry Call-Back Study. Autism : the international journal of research and practice, 13623613211052108. Advance online publication.

Berry, J. G., Perrin, J. M., Hoover, C., Rodean, J., Agrawal, R. K., & Kuhlthau, K. A. (2021). Health Care Insurance Adequacy for Children and Youth With Special Health Care NeedsPediatrics148(4), e2020039891.

Annaswamy, T. M., Chandan, P., & Houtrow, A. J. (2021). Health care for people with disabilities: Need for systemic change. PM & R : the journal of injury, function, and rehabilitation13(10), 1193–1195.

Pruitt, D. W., Zigler, C. K., Massagli, T. L., & Houtrow, A. J. (2021). Assessing the Field of Pediatric Rehabilitation Medicine’s Interest in Expanding Fellowship Training to Pediatricians. PM & R : the journal of injury, function, and rehabilitation13(10), 1136–1147.


Ming, D. Y., Jones, K. A., Sainz, E., Tkach, H., Stewart, A., Cram, A., Morreale, M. C., Dizon, S., & deJong, N. A. (2021). Feasibility of implementing systematic social needs assessment for children with medical complexity. Implementation science communications2(1), 130.

Berry, J. G., Rodean, J., Leahy, I., Rangel, S., Johnson, C., Crofton, C., Staffa, S. J., Hall, M., Methot, C., Desmarais, A., & Ferrari, L. (2021). Hospital Volumes of Inpatient Pediatric Surgery in the United States. Anesthesia and analgesia133(5), 1280–1287.


Davidson, H., Kelly, A., & Agrawal, R. (2021). Retrospective review of Kawasaki disease at the Women’s and Children’s Hospital, South AustraliaJournal of paediatrics and child health57(12), 1893–1898.

AlRasheed, R. M., Martin-Herz, S. P., Glidden, D. V., & Okumura, M. J. (2021). Adherence to Child Attention-Deficit/Hyperactivity Disorder Treatment Guidelines in Medical Homes-Results from a National Survey. Journal of developmental and behavioral pediatrics : JDBP42(9), 695–703.

Sheth, A., & Agrawal, R. (2021). Trends in Pediatric Private Insurance and Medicaid Spending: A Repeated Cross-Sectional Analysis of Data from 2002 to 2014. Inquiry : a journal of medical care organization, provision and financing58, 469580211010433.

Houtrow A. (2021). Engaging Pediatric Physiatrists and Other Pediatric Rehabilitation Professionals to Optimize the Care of Children With Cancer. Archives of physical medicine and rehabilitation102(12), 2489–2490.

More 2021 articles coming soon!


Daley, A. M., Lestishock, L., & White, P. H. (2020). Pediatric Nurse Practitioners’ Perspectives on Engaging Adolescents to Shift from Pediatric to Adolescent-Focused Health Care Services. Journal of Pediatric Health Care34(6), 550–559.

Garrity, B. M., Singer, S. J., Ward, E., Bastianelli, L.Berry, J. G., Cofton, C., Glader, L., Casto, E. L., EHRLL Working Group 56, Cox, J. E. (2020). Parent Perspectives on Short-Term Recovery After Spinal Fusion Surgery in Children With Neuromuscular Scoliosis. Journal of Patient Experience, 7(6), 1369-1377. doi:

White, P.H., Ilango, S. M., Caskin, A. M., Aramburu de la Guardia, M. G., McManus, M. A. (2020). Health Care Transition in School-Based Health Centers: A Pilot Study. The Journal of School Nursing, 1-7. doi:

Kuo, D. Z., Houtrow, A. J. (2020). Health of Newborns and Infants Born to Women With Disabilities: The Life Course Perspective. Pediatrics, 146(6), e2020032607. doi: 10.1542/peds.2020-032607.

Musial, A., Thomson, J. E. (2020). A Case to Optimize Medications in Children With Severe Neurological Impairment. JAMA Network Open, 3(12), e2029728. doi: 10.1001/jamanetworkopen.2020.29728

deJong, N.A., Vu, M. B., Cui, J., Dole, M., Moulton, D.E., Kappelman, M. D. (2020). A Multiple Case Study of Coordinated Care for Children with IBD through Caregiver InterviewsInternational Journal of Care Coordination, 23(4), 156-164. doi: 10.1177/2053434520979957

Perrin, J. M., Kenney, G. M., & Rosenbaum, S. (2020). Medicaid and Child Health EquityNew England Journal of Medicine, 383, 2595-2598. doi:


Pinto, D. , Carroll-Scott, A. , Christmas, T. , Heidig, M., Turchi, R. (2020). Community health workers: improving population health through integration into healthcare systems. Current Opinion in Pediatrics, 32 (5), 674-682. doi: 10.1097/MOP.0000000000000940.

Lillvis, J. H., Lillvis, D. F., Towle-Miller, L. M., Wilding, G. E., Kuo, D. Z. (2020). Association of state vision screening requirements with parent-reported vision testing in young children. Journal of American Association for Pediatric Ophthalmology and Strabismus24(5), 291.e1-291.e6.

Ross, M. H., Parnell, L. S., Spears, T. G., Ming, D. Y. (2020). Telemedicine Video Visits for Children with Medical Complexity in a Structured Clinical Complex Care Program. Global Pediatric Health7, 2333794X20952196.


Oreskovic, N. M., Kinane, T. B., Aryee, E., Kuhlthau, K. A., & Perrin, J. M. (2020). The Unexpected Risks of COVID-19 on Asthma Control in Children. The Journal of Allergy and Clinical Immunology: In Practice8(8), 2489–2491.

Lindly, O.Crossman, M., Eaves, M., Philpotts, L., & Kuhlthau, K. (2020). Health Literacy and Health Outcomes Among Children With Developmental Disabilities: A Systematic Review. American Journal on Intellectual and Developmental Disabilities, 1(125), 389-407. doi: 10.1352/1944-7558-125.5.389

Berry, J. G., Harris, D., Coller, R. J.Chung, P. J., Rodean, J., Macy, M., & Linares, D. E. (2020). The Interwoven Nature of Medical and Social Complexity in US ChildrenJAMA Pediatrics174(9), 891.


Sobotka, SA Discharge Practices for Children with Home Mechanical Ventilation Across the United States: Key Informant Perspectives.  Am Thorac Soc. 2020 Aug 11. doi: 10.1513/AnnalsATS.201912-875OC.


Pankewicz, A., Davis, R. K., Kim, J., Antonelli, R., Rosenberg, H., Berhane, Z., Turchi, R. M. (2020). Children With Special Needs: Social Determinants of Health and Care Coordination. Clinical Pediatrics59(13), 1161–1168.

Mai, K., Davis, R. K., Hamilton, S., Robertson-James, C., Calaman, S., Turchi, R. M. (2020). Identifying Caregiver Needs for Children With a Tracheostomy Living at Home. Clinical Pediatrics59(13), 1169–1181.

Easterlin, M. C., Berdahl, C. T., Rabizadeh, S., Spiegel, B., Agoratus, L., Hoover, C., & Dudovitz, R. (2020). Child and Family Perspectives on Adjustment to and Coping With Pediatric Inflammatory Bowel Disease. Journal of Pediatric Gastroenterology & Nutrition71(1), e16–e27.

Doupnik, S. K., Rodean, J., Feinstein, J., Gay, J. C., Simmons, J., Bettenhausen, J. L., Markham, J. L., Hall, M., Zima, B. T., & Berry, J. G. (2020). Health Care Utilization and Spending for Children With Mental Health Conditions in MedicaidAcademic Pediatrics20(5), 678–686.

 Berry J. The Pediatric-Specific American Society of Anesthesiologists Physical Status Score: A Multicenter Study Anesth Analg. 2020 Jul 8. doi: 10.1213/ANE.0000000000005025. Online ahead of print.

Berry J. Being Mindful About Follow-up Care After Pediatric Hospitalization for Bronchiolitis. PMID: 32628252 DOI: 10.1001/jamapediatrics.2020.1945

Coller R. Codesign and Usability Testing of a Mobile Application to Support   Family-Delivered Enteral Tube Care Hospital Pediatrics August 2020, 10 (8) 641-650; DOI:


Coller R.  Ambulatory quality, special health care needs, and emergency department or hospital use for US children. Health Serv Res. 2020 Jun 27. doi: 10.1111/1475-6773.13308.


Houtrow ABecoming anti-racist for the benefit of our patients. J Pediatr Rehabil Med. 2020;13(1):1-2. doi: 10.3233/PRM-200680.

 Houtrow A. Addressing Burnout: Symptom Management Versus Treating the Cause.J Pediatr. 2020 May 1;S0022-3476(20)30572-2. doi: 10.1016/j.jpeds.2020.04.068.

Macdonald KT, Mosquera RA, Yadav A, Caldas-Vasquez MC, Emanuel H, Rennie K. Neurocognitive functioning in individuals with congenital central hypoventilation syndrome. BMC Pediatr. 2020 May 6;20(1):194. doi: 10.1186/s12887-020-2006-5.

Millstein RA, Lindly OJ, Luberto CM, Perez GK, Schwartz GN, Kuhlthau K, Park ER. An Exploration of Health Behaviors in a Mind-Body Resilience Intervention for Parents of Children with Developmental Disabilities. J Dev Behav Pediatr. 2020 May 12. doi: 10.1097/DBP.0000000000000813. Online ahead of print.


Lindly OJ, Crossman MK, Shui AM, Kuo DZ, Earl KM, Kleven AR, Perrin JM, Kuhlthau KAHealthcare access and adverse family impact among U.S. children ages 0-5 years by prematurity status. BMC Pediatr. 2020 Apr 17;20(1):168. doi: 10.1186/s12887-020-02058-0.

Berry JG, Harris D, Coller RJ, Chung PJ, Rodean J, Macy M, Linares DEThe Interwoven Nature of Medical and Social Complexity in US Children. JAMA Pediatr. 2020 Apr 27;e200280. doi: 10.1001/jamapediatrics.2020.0280. Online ahead of print.

Feehan K, Kehinde F, Sachs K, Mossabeb R, Berhane Z, Pachter LM, Brody S, Turchi RMDevelopment of a Multidisciplinary Medical Home Program for NICU Graduates. Matern Child Health J. 2020 Jan;24(1):11-21. doi: 10.1007/s10995-019-02818-0.

Barnert E, Sun A, Abrams LS, Chung PJPhysical Health, Medical Care Access, and Medical Insurance Coverage of Youth Returning Home After Incarceration: A Systematic Review.  J Correct Health Care. 2020 Apr 1:1078345820915908. doi: 10.1177/1078345820915908. 

Bergman DA, Keller D, Kuo DZ, Lerner C, Mansour M, Stille C, Richardson T, Rodean J, Hudak M. Costs and Use for Children With Medical Complexity in a Care Management Program. Pediatrics. 2020 Apr;145(4). pii: e20192401. doi: 10.1542/peds.2019-2401.

Coury DL, Murray DS, Fedele A, Hess T, Kelly A, Kuhlthau KAThe Autism Treatment Network: Bringing Best Practices to All Children With Autism. Pediatrics. 2020 Apr;145(Suppl 1):S13-S19. doi: 10.1542/2019-1895D.

Smith KA, Gehricke JG, Iadarola S, Wolfe A, Kuhlthau KADisparities in Service Use Among Children With Autism: A Systematic Review. Pediatrics. 2020 Apr;145(Suppl 1):S35-S46. doi: 10.1542/peds.2019-1895G.

 Crossman MK, Lindly OJ, Chan J, Eaves M, Kuhlthau KA, Parker RA, Coury DL, Zand DH, Nowinski LA, Smith K, Tomkinson M, Murray DS. Families’ Experiences With Family Navigation Services in the Autism Treatment Network.Pediatrics. 2020 Apr;145(Suppl 1):S60-S71. doi: 10.1542/peds.2019-1895I.

Lindly OJ, Chan J, Levy SE, Parker RA, Kuhlthau KAService Use Classes Among School-aged Children From the Autism Treatment Network Registry. Pediatrics. 2020 Apr;145(Suppl 1):S140-S150. doi: 10.1542/peds.2019-1895Q.

Emanuel H, Rennie K, Macdonald K, Yadav A, Mosquera RA. Screening Children with a Family History of Central Congenital Hypoventilation Syndrome. Case Rep Pediatr. 2020 Mar 26;2020:2713606. doi: 10.1155/2020/2713606. eCollection 2020.

Ehlenbach ML, Coller RJ. Growing Evidence for Successful Care Management in Children With Medical Complexity. Pediatrics. 2020 Apr;145(4). pii: e20193982. doi: 10.1542/peds.2019-3982.

Barnert ES, Lopez N, Pettway B, Keshav N, Abrams LS, Zima B, Chung PJ. The Role of Parent Engagement in Overcoming Barriers to Care for Youth Returning Home After Incarceration.J Community Health. 2020 Apr;45(2):329-337. doi: 10.1007/s10900-019-00747-1.


Coller, R. J., Berry, J. G., Kuo, D. Z.Kuhlthau, K., Chung, P. J.Perrin, J. M.Hoover, C. G., Warner, G., Shelton, C., Thompson, L. R., Garrity, B., & Stille, C. J. (2020). Health System Research Priorities for Children and Youth With Special Health Care Needs Pediatrics145(3).

Fenning RM, Steinberg-Epstein R, Butter EM, Chan J, McKinnon-Bermingham K, Hammersmith KJ, Moffitt J, Shui AM, Parker RA, Coury DL, Wang PP, Kuhlthau KAAccess to Dental Visits and Correlates of Preventive Dental Care in Children with Autism Spectrum Disorder. J Autism Dev Disord. 2020 Feb 28. doi: 10.1007/s10803-020-04420-8. [Epub ahead of print]

Easterlin MC, Berdahl CT, Rabizadeh S, Spiegel B, Agoratus L, Hoover C, Dudovitz R. Child and Family Perspectives on Adjustment To and Coping With Pediatric Inflammatory Bowel Disease. J Pediatr Gastroenterol Nutr. 2020 Mar 5. doi: 10.1097/MPG.0000000000002693. [Epub ahead of print]

Counts NZ, Billioux A, Perrin JMShort-term and Long-term Returns for States Implementing Pediatric Alternative Payment Models. JAMA Pediatr. 2020 Mar 2. doi: 10.1001/jamapediatrics.2019.6248. [Epub ahead of print] No abstract available.


Fenning, R. M., Steinberg-Epstein, R., Butter, E. M., Chan, J., McKinnon-Bermingham, K., Hammersmith, K. J., Moffitt, J., Shui, A. M., Parker, R. A., Coury, D. L., Wang, P. P., & Kuhlthau, K. A. (2020). Access to Dental Visits and Correlates of Preventive Dental Care in Children with Autism Spectrum Disorder. Journal of Autism and Developmental Disorders50(10), 3739–3747.

Webber S, Babal JC, Shadman KA, Coller RJ, Moreno MA. Exploring academic pediatrician perspectives of factors impacting physician well-being. Acad Pediatr. 2020 Feb 22. pii: S1876-2859(20)30075-9. doi: 10.1016/j.acap.2020.02.018. [Epub ahead of print]

Ravid NL, Zamora K, Rehm R, Okumura M, Takayama J, Kaiser S. Implementation of a multidisciplinary discharge videoconference for children with medical complexity: a pilot study. Pilot Feasibility Stud. 2020 Feb 18;6:27. doi: 10.1186/s40814-020-00572-7. eCollection 2020.

Doupnik SK, Rodean J, Feinstein J, Gay JC, Simmons J, Bettenhausen JL, Markham JL, Hall M, Zima BT, Berry JGHealthcare Utilization and Spending for Children with Mental Health Conditions in Medicaid. Acad Pediatr. 2020 Feb 1. pii: S1876-2859(20)30053-X. doi: 10.1016/j.acap.2020.01.013. [Epub ahead of print]

Hagerman TK, Carle AC, Houtrow AJ. Differences in Reporting Child Health Needs and Status and Developmental Concerns between Mothers and Fathers: Findings from the National Survey of Children’s Health. J Pediatr. 2020 Feb 6. pii: S0022-3476(19)31738-X. doi: 10.1016/j.jpeds.2019.12.059. [Epub ahead of print]

Fayed N, Cohen E, Houtrow AQuality of life cannot be predicted from a brain scan. Dev Med Child Neurol. 2020 Feb 9. doi: 10.1111/dmcn.14484. [Epub ahead of print] No abstract available.

Coller RJ, Berry JG, Kuo DZ, Kuhlthau K, Chung PJ, Perrin JM, Hoover CG, Warner G, Shelton C, Thompson LR, Garrity B, Stille CJ. Health System Research Priorities for Children and Youth With Special Health Care Needs. Pediatrics. 2020 Feb 5. pii: e20190673. doi: 10.1542/peds.2019-0673. [Epub ahead of print]


Perrin JM, Oreskovic NM. Changing Pediatric Primary Care. JAMA Pediatr. 2020 Jan 21. doi: 10.1001/jamapediatrics.2019.5532. [Epub ahead of print] No abstract available

Schmidt A, Ilango SM, McManus MA, Rogers KK, White PH. Outcomes of pediatric to adult health care transition interventions: An updated systematic review J Pediatr Nurs. 2020 Jan 22;51:92-107. doi: 10.1016/j.pedn.2020.01.002. [Epub ahead of print] Review.

Cohen E, Coller RJEvaluating Integrated Care for Children: A Clarion Call or a Call for Clarity? Pediatrics. 2020 Jan;145(1). pii: e20193282. doi: 10.1542/peds.2019-3282.

McManus BM, Murphy NJ, Richardson Z, Khetani MA, Schenkman M, Morrato EH. Family-centred care in early intervention: Examining caregiver perceptions of family-centred care and early intervention service use intensity. Child Care Health Dev. 2020 Jan;46(1):1-8. doi: 10.1111/cch.12724. Epub 2019 Dec 18.


Lail J, Fields E, Paolella A, Schoettker PJ. Primary Care Quality Improvement Metrics and National Committee on Quality Assurance Medical Home Recognition for Children With Medical Complexity.Pediatr Qual Saf. 2019 Nov 26;4(6):e231. doi: 10.1097/pq9.0000000000000231. eCollection 2019 Nov-Dec.

Kawakatsu S, Nikanjam M, Lin M, Le S, Saunders I, Kuo DJ, Capparelli EV. Population pharmacokinetic analysis of high-dose methotrexate in pediatric and adult oncology patients. Cancer Chemother Pharmacol.2019 Dec;84(6):1339-1348. doi: 10.1007/s00280-019-03966-4. Epub 2019 Oct 4.

Barsan v, Paul M, Gorsi H, Malicki D, Elster J, Kuo DJ, Crawford J. Clinical Impact of Next-generation Sequencing in Pediatric Neuro-Oncology Patients: A Single-institutional Experience. Cureus. 2019 Dec 3;11(12):e6281. doi: 10.7759/cureus.6281.

Shore BJ, Hall M, Matheney TH, Snyder B, Trenor CC 3rd, Berry JG. Incidence of Pediatric Venous Thromboembolism After Elective Spine and Lower-Extremity Surgery in Children With Neuromuscular Complex Chronic Conditions: Do we Need Prophylaxis? J Pediatr Orthop. 2019 Dec 9. doi: 10.1097/BPO.0000000000001483. 

Perrin JM, Lu MC, Geller A, DeVoe JE. Vibrant and Healthy Kids: Aligning Science, Practice, and Policy to Advance Health Equity: A Report from the National Academies of Science, Engineering, and Medicine. Acad Pediatr. 2019 Dec 12. pii: S1876-2859(19)30513-3. doi: 10.1016/j.acap.2019.11.019. 

Houtrow AJ, Pruitt DW, Zigler CK. Gender-Based Salary Inequities among Pediatric Rehabilitation Medicine Physicians in the United States. Arch Phys Med Rehabil.2019 Dec 21. pii: S0003-9993(19)31442-X. doi: 10.1016/j.apmr.2019.11.007. 

Tercyak KP, Bronheim SM, Kahn N, Robertson HA, Anthony BJ, Mays D, O’Neill SC, Peterson SK, Miesfeldt S, Peshkin BN, DeMarco TA.Cancer genetic health communication in families tested for hereditary breast/ovarian cancer risk: a qualitative investigation of impact on children’s genetic health literacy and psychosocial adjustment. Transl Behav Med. 2019 May 16;9(3):493-503. doi: 10.1093/tbm/ibz012.

Congdon JL, Trope LA, Bruce JS, Chung PJ, Dehlendorf C, Chamberlin LJ. Meeting the Needs of Postpartum Women With and Without a Recent Preterm Birth: Perceptions of Maternal Family Planning in Pediatrics. Matern Child Health J.  2019 Dec 24. doi: 10.1007/s10995-019-02829-x. 


Coller, R. J., Rodean, J., Linares, D. E., Chung, P. J., Pulcini, C., Hall, M., Alpern, E., Mosquera, R., Casto, E., & Berry, J. G. (2019). Variation in Hospitalization Rates Following Emergency Department Visits in Children with Medical Complexity. The Journal of Pediatrics214, 113-120.e1.

Fleurence RL, Forrest CB, Shuren J.Strengthening the Evidence Base for Pediatric Medical Devices Using Real-World Data. J Pediatr. 2019 Nov;214:209-211. doi: 10.1016/j.jpeds.2019.06.060. Epub 2019 Aug 1. 

Sklansky DJ, Butteris S, Shadman KA, Kelly MM, Edmonson MB, Nackers K, Allen A, Barreda CB, Ehlenbach ML, Webber SA, Tiedt K, Smith W, Hoffman RJ, Zhao Q, Thurber AS, Coller RJ. Earlier Hospital Discharge With Prospectively Designated Discharge Time in the Electronic Health Record. Pediatrics. 2019 Nov;144(5). pii: e20190929. doi: 10.1542/peds.2019-0929. Epub 2019 Oct 11.

Houtrow AJ, Carle A, Perrin JM, Stein REK. CSHCN on SSI for disability have more health impacts and needs than other CSHCN on Medicaid. Acad Pediatr. 2019 Nov 4. pii: S1876-2859(19)30448-6. doi: 10.1016/j.acap.2019.10.014.

Easterlin MC, Chung PJ, Dudovitz R. Fostering Resilience Among Youths Exposed to Adverse Childhood Experiences-Reply. JAMA Pediatr. 2019 Nov 18. doi: 10.1001/jamapediatrics.2019.4384. 


Chloe AY, Unaka NI, Schondelmeyer AC, Bignall WJR, Vilvens HL, Thomson JEInpatient Communication Barriers and Drivers When Caring for Limited English Proficiency Children. J Hosp Med. 2019 Oct 1;14(10):607-613. doi: 10.12788/jhm.3240. Epub 2019 Jul 24.

Sobotka SA, Lynch E, Quinn MT, Awadalla SS, Agrawal RK, Peek ME. Unmet Respite Needs of Children With Medical Technology Dependence. Clin Pediatr (Phila). 2019 Oct;58(11-12):1175-1186. doi: 10.1177/0009922819870251.

Garrity B, Berry J, Crofton C, Ward E, Cox J, Glader L, Bastianelli L, Emans J, Glotzbecker M, Emara N, Salem J, Jabur T, Higgins S, Shapiro J, Singer S. Parent-to-Parent Advice on Considering Spinal Fusion in Children with Neuromuscular Scoliosis. J Pediatr. 2019 Oct; 213:149-154. doi: 10.1016/j.jpeds.2019.05.055. Epub 2019 Jun 26.

Kathleen B. Huth,  Dennis Z. Kuo. Using a Team‐Based Approach to Improve Care Coordination. AAP News. 2019 Oct.

Auger KA, Harris JM, Gay JC, Teufel R, McClead RE, Neuman MI, Agrawal R, Simon HK, Peltz A, Tejedor-Sojo J, Morse RB, Del Beccaro MA, Fieldston E, Shah SS. Progress (?) Toward Reducing Pediatric Readmissions. J Hosp Med. 2019 Oct 1;14(10):618-621. doi: 10.12788/jhm.3210. Epub 2019 Jun 19.

Toh S, Rifas-Shiman SL, Lin PD, Bailey LC, Forrest CB, Horgan CE, Lunsford D, Moyneur E, Sturtevant JL, Young JG, Block JP; PCORnet Antibiotics and Childhood Growth Study Group. Privacy-protecting multivariable-adjusted distributed regression analysis for multi-center pediatric study. Pediatr Res. 2019 Oct 2.

Mazurek MO, Stobbe G, Loftin R, Malow BA, Agrawal MM, Tapia M, Hess A, Farmer J, Cheak-Zamora N, Kuhlthau K, Sohl K. ECHO Autism Transition: Enhancing healthcare for adolescents and young adults with autism spectrum disorder. Autism. 2019 Oct,3; doi: 10.1177/1362361319879616​ PubMed PMID: 31581793

Flanagan P, Tigue PM, Perrin J. The Value Proposition for Pediatric Care. JAMA Pediatr. 2019 Oct 21. doi: 10.1001/jamapediatrics.2019.3486.

Park ER, Perez GK, Millstein RAm Luberto CM, Traeger L, Proszynski J, Chad-Friedman E, Kuhlthau KA. A Virtual Resiliency Intervention Promoting Resiliency for Parents of Children with Learning and Attentional Disabilities: A Randomized Pilot Trial. Matern Child Health J. 2019 Oct 24. doi: 10.1007/s10995-019-02815-3. ​​


Ames SG, Davis BS, Marin JR, Fink EL, Olson LM, Gausche-Hill M, Kahn JM. Emergency Department Pediatric Readiness and Mortality in Critically Ill Children. Pediatrics. 2019 Sep 1;144(3):e20190568. doi: 10.1542/peds.2019-0568. PubMed PMID: 31444254

Raphael JL, Beers LS, Perrin JM, Garg A. Public Charge: An Expanding Challenge to Child Health Care Policy. Academic pediatrics. 2019 Sep 12. doi: 10.1016/j.acap.2019.09.001. PubMed PMID: 31521776

Coller RJ, Rodean J, Linares DE, Chung PJ, Pulcini C, Hall M, Alpern E, Mosquera R, Casto E, Berry JGVariation in Hospitalization Rates Following Emergency Department Visits in Children with Medical Complexity. The Journal of pediatrics. 2019 Sep 17. doi: 10.1016/j.jpeds.2019.07.034. PubMed PMID: 31540760


Thomson, J. E.Feinstein, J. A., Hall, M., Gay, J. C., Butts, B., & Berry, J. G. (2019). Identification of Children With High-Intensity Neurological Impairment. JAMA Pediatrics173(10), 989.


Dunbar, P., Hall, M., Gay, J. C., Hoover, C., Markham, J. L., Bettenhausen, J. L., Perrin, J. M.Kuhlthau, K. A.Crossman, M., Garrity, B., & Berry, J. G. (2019). Hospital Readmission of Adolescents and Young Adults With Complex Chronic Disease. JAMA Network Open2(7), e197613.


Feinstein, J. A., Rodean, J., Hall, M., Doupnik, S. K., Gay, J. C., Markham, J. L., Bettenhausen, J. L., Simmons, J., Garrity, B., & Berry, J. G. (2019). Outpatient Prescription Opioid Use in Pediatric Medicaid Enrollees With Special Health Care NeedsPediatrics143(6), e20182199.


Doshi P, Tilford JM, Ounpraseuth S, Kuo DZ, Payakachat N. Correction to: Do Insurance Mandates Affect Racial Disparities in Outcomes for Children with Autism?. Matern Child Health J. 2019 May;23(5):704-709. doi: 10.1007/s10995-018-02703-2. PubMed PMID: 30729362.

Abood KK, Paul MR, Kuo DJDeep Vein Thrombosis in a Young, Healthy Baseball Catcher: A Case Report and Review of the Literature. J Pediatr Hematol Oncol. 2019 May;41(4):321-323. doi: 10.1097/MPH.0000000000001113. PubMed PMID: 29401105.


Feinstein, J. A., Hall, M., Antoon, J. W., Thomson, J., Flores, J. C., Goodman, D. M., Cohen, E., Azuine, R., Agrawal, R.Houtrow, A. J., DeCourcey, D. D., Kuo, D. Z.Coller, R., Gaur, D. S., & Berry, J. G. (2019). Chronic Medication Use in Children Insured by Medicaid: A Multistate Retrospective Cohort Study. Pediatrics143(4), e20183397.

Berry JG, Goodman DM, Coller RJ, Agrawal R, Kuo DZ, Cohen E, Thomson J, DeCourcey D, DeJong N, Agan A, Gaur D, Coquillette M, Crofton C, Houtrow A, Hall M. Association of Home Respiratory Equipment and Supply Use with Health Care Resource Utilization in Children. J Pediatr. 2019 Apr;207:169-175.e2. doi: 10.1016/j.jpeds.2018.11.046. Epub 2019 Jan 4. PubMed PMID: 30612815.

Berry JG, Johnson C, Crofton C, Staffa SJ, DiTillio M, Leahy I, Salem J, Rangel SJ, Singer SJ, Ferrari L. Predicting Postoperative Physiologic Decline After Surgery. Pediatrics. 2019 Apr;143(4). doi: 10.1542/peds.2018-2042. Epub 2019 Mar 1. PubMed PMID: 30824493.

Neumeyer AM, Anixt J, Chan J, Perrin JM, Murray D, Coury DL, Bennett A, Farmer J, Parker RA. Identifying Associations Among Co-Occurring Medical Conditions in Children With Autism Spectrum Disorders. Acad Pediatr. 2019 Apr;19(3):300-306. doi: 10.1016/j.acap.2018.06.014. Epub 2018 Jul 24. PubMed PMID: 30053632.

Chien AT, Toomey SL, Kuo DZ, Van Cleave J, Houtrow AJ, Okumura MJ, Westfall MY, Petty CR, Quinn JA, Kuhlthau KA, Schuster MA. Care Quality and Spending Among Commercially Insured Children With Disabilities. Acad Pediatr. 2019 Apr;19(3):291-299. doi: 10.1016/j.acap.2018.06.004. Epub 2018 Jun 19. PubMed PMID: 29932986.

Barnert ES, Abrams LS, Dudovitz R, Coker TR, Bath E, Tesema L, Nelson BB, Biely C, Chung PJWhat Is the Relationship Between Incarceration of Children and Adult Health Outcomes?. Acad Pediatr. 2019 Apr;19(3):342-350. doi: 10.1016/j.acap.2018.06.005. Epub 2018 Jun 21. PubMed PMID: 29935252; PubMed Central PMCID: PMC6309510.


Kuo DZThe Medical Home for Children with Medical Complexity: Back to Basics. J Pediatr. 2019 Mar;206:8-9. doi: 10.1016/j.jpeds.2018.11.050. Epub 2018 Dec 13. PubMed PMID: 30553538.

Francois LN, Yang J, Baer RJ, Chung PJ, Jelliffe-Pawlowski LL, Coker TR. Cross-Generational Contributors to Preterm Birth in California: Singletons Based on Race/Ethnicity. Am J Perinatol. 2019 Mar;36(4):383-392. doi: 10.1055/s-0038-1668554. Epub 2018 Aug 19. PubMed PMID: 30121941.

Coker TR, Porras-Javier L, Zhang L, Soares N, Park C, Patel A, Tang L, Chung PJ, Zima BT. A Telehealth-Enhanced Referral Process in Pediatric Primary Care: A Cluster Randomized Trial. Pediatrics. 2019 Mar;143(3). doi: 10.1542/peds.2018-2738. Epub 2019 Feb 15. PubMed PMID: 30770523.

Avritscher EBC, Mosquera RA, Tyson JE, Pedroza C, Samuels CL, Harris TS, Gomez-Rubio A, Navarro FA, Moody SB, Beyda RM. Post-Trial Sustainability and Scalability of the Benefits of a Medical Home for High-Risk Children with Medical Complexity. J Pediatr. 2019 Mar;206:232-239.e3. doi: 10.1016/j.jpeds.2018.10.035. Epub 2018 Dec 4. PubMed PMID: 30522751; PubMed Central PMCID: PMC6402793.

Dudovitz RN, Wong MD, Perez-Aguilar G, Kim G, Chung PJUpdate on How School Environments, Social Networks, and Self-Concept Impact Risky Health Behaviors. Acad Pediatr. 2019 Mar;19(2):133-134. doi: 10.1016/j.acap.2018.09.014. Epub 2018 Oct 2. Review. PubMed PMID: 30287394; PubMed Central PMCID: PMC6401257.


Kelly MM, Hoonakker PLT, Coller RJInpatients Sign On: An Opportunity to Engage Hospitalized Patients and Caregivers Using Inpatient Portals. Med Care. 2019 Feb;57(2):98-100. doi: 10.1097/MLR.0000000000001043. PubMed PMID: 30520834; PubMed Central PMCID: PMC6331235.

Gay JC, Hall M, Markham JL, Bettenhausen JL, Doupnik SK, Berry JGAssociation of Extending Hospital Length of Stay With Reduced Pediatric Hospital Readmissions. JAMA Pediatr. 2019 Feb 1;173(2):186-188. doi: 10.1001/jamapediatrics.2018.3815. PubMed PMID: 30592491; PubMed Central PMCID: PMC6439598.

Fein EH, Friedlander S, Lu Y, Pak Y, Sakai-Bizmark R, Smith LM, Chantry CJ, Chung PJPhototherapy for Neonatal Unconjugated Hyperbilirubinemia: Examining Outcomes by Level of Care. Hosp Pediatr. 2019 Feb;9(2):115-120. doi: 10.1542/hpeds.2018-0136. Epub 2019 Jan 3. PubMed PMID: 30606776; PubMed Central PMCID: PMC6350264.


Nackers A, Ehlenbach M, Kelly MM, Werner N, Warner G, Coller RJEncounters From Device Complications Among Children With Medical Complexity. Hosp Pediatr. 2019 Jan;9(1):6-15. doi: 10.1542/hpeds.2018-0103. Epub 2018 Dec 10. PubMed PMID: 30530805; PubMed Central PMCID: PMC6303085.

Sobotka SA, Gaur DS, Goodman DM, Agrawal RK, Berry JG, Graham RJ. Pediatric patients with home mechanical ventilation: The health services landscape. Pediatr Pulmonol. 2019 Jan;54(1):40-46. doi: 10.1002/ppul.24196. Epub 2018 Nov 20. PubMed PMID: 30461228.

Perrin JM, Asarnow JR, Stancin T, Melek SP, Fritz GK. Mental Health Conditions and Health Care Payments for Children with Chronic Medical Conditions. Acad Pediatr. 2019 Jan – Feb;19(1):44-50. doi: 10.1016/j.acap.2018.10.001. Epub 2018 Oct 10. PubMed PMID: 30315948.

Mattson G, Kuo DZPsychosocial Factors in Children and Youth With Special Health Care Needs and Their Families.Pediatrics. 2019 Jan;143(1). doi: 10.1542/peds.2018-3171. PubMed PMID: 30559121.

Glotzbecker M, Troy M, Miller P, Berry J, Cohen L, Gryzwna A, McCann ME, Hresko MT, Goobie S, Emans J, Brustowitz R, Snyder B, Hedequist D. Implementing a Multidisciplinary Clinical Pathway Can Reduce the Deep Surgical Site Infection Rate After Posterior Spinal Fusion in High-Risk Patients. Spine Deform. 2019 Jan;7(1):33-39. doi: 10.1016/j.jspd.2018.06.010. PubMed PMID: 30587318.

Coller RJ, Ehlenbach ML. Making Time to Coordinate Care for Children With Medical Complexity. Pediatrics. 2019 Jan;143(1). doi: 10.1542/peds.2018-2958. PubMed PMID: 30584058.

Chang E, Chung PJ, Smith MC, Lee MJ, Gross DJ, Kao E, Sugiyama G. Can the Laparoscopic Approach for Adhesive Small Bowel Obstruction be Used in Octogenarians? An Observational Study Using ACS NSQIP. J Surg Res. 2019 Jan;233:345-350. doi: 10.1016/j.jss.2018.07.064. Epub 2018 Sep 7. PubMed PMID: 30502269.


Van Cleave J, Holifield C, Neumeyer AM, Perrin JM, Powers E, Van L, Kuhlthau KAExpanding the Capacity of Primary Care to Treat Co-morbidities in Children with Autism Spectrum Disorder. J Autism Dev Disord. 2018 Dec;48(12):4222-4230. doi: 10.1007/s10803-018-3630-x. PubMed PMID: 29982896.

Kogan MD, Vladutiu CJ, Schieve LA, Ghandour RM, Blumberg SJ, Zablotsky B, Perrin JM, Shattuck P, Kuhlthau KA, Harwood RL, Lu MC. The Prevalence of Parent-Reported Autism Spectrum Disorder Among US Children. Pediatrics. 2018 Dec;142(6). doi: 10.1542/peds.2017-4161. PubMed PMID: 30478241; PubMed Central PMCID: PMC6317762.

Grosse SD, Do TQN, Vu M, Feng LB, Berry JG, Sawicki GS. Healthcare expenditures for privately insured US patients with cystic fibrosis, 2010-2016. Pediatr Pulmonol. 2018 Dec;53(12):1611-1618. doi: 10.1002/ppul.24178. Epub 2018 Oct 31. PubMed PMID: 30381911.

Dudovitz RN, Chung PJ, Reber S, Kennedy D, Tucker JS, Shoptaw S, Dosanjh KK, Wong MD. Assessment of Exposure to High-Performing Schools and Risk of Adolescent Substance Use: A Natural Experiment. JAMA Pediatr. 2018 Dec 1;172(12):1135-1144. doi: 10.1001/jamapediatrics.2018.3074. PubMed PMID: 30383092; PubMed Central PMCID: PMC6350909.


Leahy I, Berry JG, Johnson CJ, Crofton C, Staffa SJ, Ferrari L. Does the Current American Society of Anesthesiologists Physical Status Classification Represent the Chronic Disease Burden in Children Undergoing General Anesthesia?.Anesth Analg. 2018 Nov 21;. doi: 10.1213/ANE.0000000000003911. [Epub ahead of print] PubMed PMID: 30489312.

Brenner M, O’Shea MP, McHugh R, Clancy A, Larkin P, Luzi D, Pecoraro F, Olaso EM, Lignou S, Alma M, Satherley RM, Tamburis O, Warters A, Wolfe I, Hilliard C, Berry J, Alexander D, Rigby M, Blair M. Principles for provision of integrated complex care for children across the acute-community interface in Europe. Lancet Child Adolesc Health. 2018 Nov;2(11):832-838. doi: 10.1016/S2352-4642(18)30270-0. PubMed PMID: 30336897.

Kelly MM, Coller RJ, Kohler JE, Zhao Q, Sklansky DJ, Shadman KA, Thurber A, Barreda CB, Edmonson MB. Trends in Hospital Treatment of Empyema in Children in the United States. J Pediatr. 2018 Nov;202:245-251.e1. doi: 10.1016/j.jpeds.2018.07.004. Epub 2018 Aug 28. PubMed PMID: 30170858.

Brenner M, O’Shea MP, Larkin P, Luzi D, Pecoraro F, Tamburis O, Berry J, Alexander D, Rigby M, Blair M. Management and integration of care for children living with complex care needs at the acute-community interface in Europe. Lancet Child Adolesc Health. 2018 Nov;2(11):822-831. doi: 10.1016/S2352-4642(18)30272-4. PubMed PMID: 30336896.


Tieder JS, Sisk B, Hudak M, Richerson JE, Perrin JMGeneral Pediatricians and Value-Based Payments. Pediatrics. 2018 Oct;142(4). doi: 10.1542/peds.2018-0502. PubMed PMID: 30237230.

Schickedanz A, Chung PJAddressing Family Homelessness in Pediatrics: Progress and Possibility. Pediatrics. 2018 Oct;142(4). doi: 10.1542/peds.2018-2328. Epub 2018 Sep 3. PubMed PMID: 30177512.


Contreras S, Porras-Javier L, Zima BT, Soares N, Park C, Patel A, Chung PJ, Coker TR. Development of a Telehealth-Coordinated Intervention to Improve Access to Community-Based Mental Health. Ethn Dis. 2018;28(Suppl 2):457-466. doi: 10.18865/ed.28.S2.457. eCollection 2018. PubMed PMID: 30202199; PubMed Central PMCID: PMC6128350.

Berry JG, Berry SD. Caring for Patients With Neurological Impairment: Conversations Between a Pediatrician and Geriatrician. JAMA Pediatr. 2018 Sep 1;172(9):795-796. doi: 10.1001/jamapediatrics.2018.1079. PubMed PMID: 29971353.

Richardson T, Rodean J, Harris M, Berry J, Gay JC, Hall M. Development of Hospitalization Resource Intensity Scores for Kids (H-RISK) and Comparison across Pediatric Populations. J Hosp Med. 2018 Sep 1;13(9):602-608. doi: 10.12788/jhm.2948. Epub 2018 Apr 25. PubMed PMID: 29694460.

Barnert ES, Coller RJ, Nelson BB, Thompson LR, Klitzner TS, Szilagyi M, Breck AM, Chung PJA Healthy Life for a Child With Medical Complexity: 10 Domains for Conceptualizing Health. Pediatrics. 2018 Sep;142(3). doi: 10.1542/peds.2018-0779. Epub 2018 Aug 17. PubMed PMID: 30120101.

Barnert ES, Chung PJResponding to Parental Incarceration As a Priority Pediatric Health Issue. Pediatrics. 2018 Sep;142(3). doi: 10.1542/peds.2018-1923. Epub 2018 Jul 9. PubMed PMID: 29987167; PubMed Central PMCID: PMC6317561.

Berry JG, Glader L, Stevenson RD, Hasan F, Crofton C, Hussain K, Hall M. Associations of Coexisting Conditions with Healthcare Spending for Children with Cerebral Palsy. J Pediatr. 2018 Sep;200:111-117.e1. doi: 10.1016/j.jpeds.2018.04.021. Epub 2018 May 8. PubMed PMID: 29752173.

Bucholz EM, Gay JC, Hall M, Harris M, Berry JGTiming and Causes of Common Pediatric Readmissions. J Pediatr. 2018 Sep;200:240-248.e1. doi: 10.1016/j.jpeds.2018.04.044. Epub 2018 Jun 7. PubMed PMID: 29887387.


Bettenhausen JL, Hall M, Colvin JD, Puls HT, Chung PJThe Effect of Lowering Public Insurance Income Limits on Hospitalizations for Low-Income Children. Pediatrics. 2018 Aug;142(2). doi: 10.1542/peds.2017-3486. Epub 2018 Jul 9. PubMed PMID: 29987166.

Jones KA, Do S, Porras-Javier L, Contreras S, Chung PJ, Coker TR. Feasibility and Acceptability in a Community-Partnered Implementation of CenteringParenting for Group Well-Child Care. Acad Pediatr. 2018 Aug;18(6):642-649. doi: 10.1016/j.acap.2018.06.001. Epub 2018 Jun 9. PubMed PMID: 29890229.

Perrin JMCan Mental Health Parity Help Address the Mental/Behavioral Gap in Child Health?. Pediatrics. 2018 Aug;142(2). doi: 10.1542/peds.2018-1572. PubMed PMID: 30037973.

Coller RJ, Klitzner TS, Lerner CF, Nelson BB, Thompson LR, Zhao Q, Saenz AA, Ia S, Flores-Vazquez J, Chung PJ. Complex Care Hospital Use and Postdischarge Coaching: A Randomized Controlled Trial. Pediatrics. 2018 Aug;142(2). doi: 10.1542/peds.2017-4278. Epub 2018 Jul 11. PubMed PMID: 29997169; PubMed Central PMCID: PMC6317544.

Shumskiy I, Richardson T, Brar S, Hall M, Cox J, Crofton C, Peltz A, Samuels-Kalow M, Alpern ER, Neuman MI, Berry JG.Well-Child Visits of Medicaid-Insured Children with Medical Complexity. J Pediatr. 2018 Aug;199:223-230.e2. doi: 10.1016/j.jpeds.2018.04.003. Epub 2018 May 8. PubMed PMID: 29752175.

Schickedanz A, Halfon N, Sastry N, Chung PJParents’ Adverse Childhood Experiences and Their Children’s Behavioral Health Problems. Pediatrics. 2018 Aug;142(2). doi: 10.1542/peds.2018-0023. Epub 2018 Jul 9. PubMed PMID: 29987168; PubMed Central PMCID: PMC6317990.


De Jesus-Rojas W, Mosquera RA, Samuels C, Eapen J, Gonzales T, Harris T, McKay S, Boricha F, Pedroza C, Aneji C, Khan A, Jon C, McBeth K, Stark J, Yadav A, Tyson JE. The Effect of Comprehensive Medical Care on the Long-Term Outcomes of Children Discharged from the NICU with Tracheostomy. Open Respir Med J. 2018;12:39-49. doi: 10.2174/1874306401812010039. eCollection 2018. PubMed PMID: 30197702; PubMed Central PMCID: PMC6110063.

Knutsen J, Crossman M, Perrin J, Shui A, Kuhlthau K. Sex differences in restricted repetitive behaviors and interests in children with autism spectrum disorder: An Autism Treatment Network study. Autism. 2018 Jul 26;:1362361318786490. doi: 10.1177/1362361318786490. [Epub ahead of print] PubMed PMID: 30047281; PubMed Central PMCID: PMC6348057.

Webber S, Butteris SM, Houser L, Coller K, Coller RJAsset-Based Community Development as a Strategy for Developing Local Global Health Curricula. Acad Pediatr. 2018 Jul;18(5):496-501. doi: 10.1016/j.acap.2018.02.001. Epub 2018 Feb 7. PubMed PMID: 29427688.

Bryant-Moore K, Haynes T, Kuo DZ, Stewart MK, Yeary KHK, Smith J, Turner J, Ounpraseuth ST, Sullivan G, McCoy S, Hudson B, Harris K. Lessons learned from using an audience response system in a community setting for research data collection. Public Health Nurs. 2018 Jul;35(4):353-359. doi: 10.1111/phn.12397. Epub 2018 Mar 22. PubMed PMID: 29566271; PubMed Central PMCID: PMC6055995.

Doupnik SK, Lawlor J, Zima BT, Coker TR, Bardach NS, Rehm KP, Gay JC, Hall M, Berry JGMental Health Conditions and Unplanned Hospital Readmissions in Children. J Hosp Med. 2018 Jul;13(7):445-452. doi: 10.12788/jhm.2910. PubMed PMID: 29964274.


Wong CA, Perrin JM, McClellan M. Making the Case for Value-Based Payment Reform in Children’s Health Care. JAMA Pediatr. 2018 Jun 1;172(6):513-514. doi: 10.1001/jamapediatrics.2018.0129. PubMed PMID: 29630698.

Kelly MM, Coller RJ, Hoonakker PL. Inpatient Portals for Hospitalized Patients and Caregivers: A Systematic Review. J Hosp Med. 2018 Jun 1;13(6):405-412. doi: 10.12788/jhm.2894. Epub 2017 Dec 20. PubMed PMID: 29261819; PubMed Central PMCID: PMC6136247.

Colvin JD, Hall M, Thurm C, Bettenhausen JL, Gottlieb L, Shah SS, Fieldston ES, Goldin AB, Melzer SM, Conway PH, Chung PJHypothetical Network Adequacy Schemes For Children Fail To Ensure Patients’ Access To In-Network Children’s Hospital. Health Aff (Millwood). 2018 Jun;37(6):873-880. doi: 10.1377/hlthaff.2017.1339. PubMed PMID: 29863927.

Kuo DZ, Berry JG, Hall M, Lyle RE, Stille CJ. Health-care spending and utilization for children discharged from a neonatal intensive care unit. J Perinatol. 2018 Jun;38(6):734-741. doi: 10.1038/s41372-018-0055-5. Epub 2018 Feb 15. PubMed PMID: 29449613.


Causey J, Gonzales T, Yadav A, Hashmi S, De Jesus-Rojas W, Jon C, Haque I, Johnston R, Stark J, McBeth K, Colasurdo G, Mosquera RCharacteristics and Outcomes of Children with Clinical History of Atopic Versus Non-atopic Asthma Admitted to a Tertiary Pediatric Intensive Care Unit. Open Respir Med J. 2018;12:21-28. doi: 10.2174/1874306401812010021. eCollection 2018. PubMed PMID: 30008967; PubMed Central PMCID: PMC6008982.

Datar A, Chung PJChildhood Self-Control and Adolescent Obesity: Evidence from Longitudinal Data on a National Cohort. Child Obes. 2018 May/Jun;14(4):238-247. doi: 10.1089/chi.2017.0217. Epub 2018 May 29. PubMed PMID: 29812975.

deJong NA, Richardson T, Chandler N, Steiner MJ, Hall M, Berry JOutpatient Visits Before Ambulatory Care-Sensitive Hospitalization of Children Receiving Medicaid. Acad Pediatr. 2018 May – Jun;18(4):390-396. doi: 10.1016/j.acap.2017.09.015. Epub 2017 Sep 28. PubMed PMID: 28964877.


Rehm KP, Brittan MS, Stephens JR, Mummidi P, Steiner MJ, Gay JC, Ayubi SA, Gujral N, Mittal V, Dunn K, Chiang V, Hall M, Blaine K, O’Neill M, McBride S, Rogers J, Berry JGIssues Identified by Postdischarge Contact after Pediatric Hospitalization: A Multisite Study. J Hosp Med. 2018 Apr;13(4):236-242. doi: 10.12788/jhm.2934. Epub 2018 Feb 2. PubMed PMID: 29394301.

Samuels-Kalow M, Peltz A, Rodean J, Hall M, Alpern ER, Aronson PL, Berry JG, Shaw KN, Morse RB, Freedman SB, Cohen E, Simon HK, Shah SS, Katsogridakis Y, Neuman MI. Predicting Low-Resource-Intensity Emergency Department Visits in Children. Acad Pediatr. 2018 Apr;18(3):297-304. doi: 10.1016/j.acap.2017.12.012. Epub 2018 Jan 10. PubMed PMID: 29331346.

Markham JL, Hall M, Gay JC, Bettenhausen JL, Berry JGLength of Stay and Cost of Pediatric Readmissions. Pediatrics.2018 Apr;141(4). doi: 10.1542/peds.2017-2934. Epub 2018 Mar 9. PubMed PMID: 29523706.

Van Cleave J, Holifield C, Perrin JMPrimary Care Providers’ Use of a Child Psychiatry Telephone Support Program. Acad Pediatr. 2018 Apr;18(3):266-272. doi: 10.1016/j.acap.2017.11.007. Epub 2017 Nov 29. PubMed PMID: 29197641.


Coller RJ, Kelly MM, Ehlenbach ML, Goyette E, Warner G, Chung PJ. Hospitalizations for Ambulatory Care-Sensitive Conditions among Children with Chronic and Complex Diseases. J Pediatr. 2018;194:218-224. doi:10.1016/j.jpeds.2017.10.038.

Langer CS, Antonelli RC, Chamberlain L, Pan RJ, Keller D. Evolving Federal and State Health Care Policy: Toward a More Integrated and Comprehensive Care-Delivery System for Children With Medical Complexity. Pediatrics. 2018;141(Supplement 3):S259-S265. doi:10.1542/peds.2017-1284K.

Lozano P, Houtrow A. Supporting Self-Management in Children and Adolescents With Complex Chronic Conditions. Pediatrics. 2018;141(Supplement 3):S233-S241. doi:10.1542/peds.2017-1284H.

Barnert ES, Abrams LS, Tesema L, Dudovitz R, Nelson BB, Coker T, Bath E, Biely C, Li N, Chung PJChild incarceration and long-term adult health outcomes: a longitudinal study. Int J Prison Health. 2018 Mar 12;14(1):26-33. doi: 10.1108/IJPH-09-2016-0052. PubMed PMID: 29480767; PubMed Central PMCID: PMC6527101.

Kuo DZ, McAllister JW, Rossignol L, Turchi RM, Stille CJCare Coordination for Children With Medical Complexity: Whose Care Is It, Anyway?. Pediatrics. 2018 Mar;141(Suppl 3):S224-S232. doi: 10.1542/peds.2017-1284G. Review. PubMed PMID: 29496973.

Cohen E, Berry JG, Sanders L, Schor EL, Wise PH. Status Complexicus? The Emergence of Pediatric Complex Care.Pediatrics. 2018 Mar;141(Suppl 3):S202-S211. doi: 10.1542/peds.2017-1284E. Review. PubMed PMID: 29496971.

Fairbrother G, Raphael JL, Chung PJ, Szilagyi PG. Medicaid in Transition: Proposed Changes in Funding Mechanisms and Their Consequences. Acad Pediatr. 2018 Mar;18(2):125-128. doi: 10.1016/j.acap.2017.11.008. Epub 2017 Dec 7. PubMed PMID: 29225133.

Feudtner C, Schall T, Nathanson P, Berry JEthical Framework for Risk Stratification and Mitigation Programs for Children With Medical Complexity. Pediatrics. 2018 Mar;141(Suppl 3):S250-S258. doi: 10.1542/peds.2017-1284J. PubMed PMID: 29496976.

Blaine K, Rogers J, OʼNeill MR, McBride S, Faerber J, Feudtner C, Berry JGClinician Perceptions of the Importance of Hospital Discharge Components for Children. J Healthc Qual. 2018 Mar/Apr;40(2):79-88. doi: 10.1097/JHQ.0000000000000084. PubMed PMID: 29329135.

Coller RJ, Kelly MM, Ehlenbach ML, Goyette E, Warner G, Chung PJ. Hospitalizations for Ambulatory Care-Sensitive Conditions among Children with Chronic and Complex Diseases. J Pediatr. 2018 Mar;194:218-224. doi: 10.1016/j.jpeds.2017.10.038. Epub 2017 Dec 1. PubMed PMID: 29198530; PubMed Central PMCID: PMC5826824.

Russell CJ, Thurm C, Hall M, Simon TD, Neely MN, Berry JGRisk factors for hospitalizations due to bacterial respiratory tract infections after tracheotomy. Pediatr Pulmonol. 2018 Mar;53(3):349-357. doi: 10.1002/ppul.23938. Epub 2018 Jan 4. PubMed PMID: 29314789; PubMed Central PMCID: PMC5815950.


Berry JG, Gay JC, Joynt Maddox K, Coleman EA, Bucholz EM, O’Neill MR, Blaine K, Hall M. Age trends in 30 day hospital readmissions: US national retrospective analysis. BMJ. 2018 Feb 27;360:k497. doi: 10.1136/bmj.k497. PubMed PMID: 29487063; PubMed Central PMCID: PMC5827573.

Gay JC, Zima BT, Coker TR, Doupnik SK, Hall M, Rodean J, O’Neill M, Morse R, Rehm KP, Berry JG, Bardach NS. Postacute Care after Pediatric Hospitalizations for a Primary Mental Health Condition. J Pediatr. 2018 Feb;193:222-228.e1. doi: 10.1016/j.jpeds.2017.09.058. Epub 2017 Nov 20. PubMed PMID: 29162345.

Mahant S, Berry JG, Kimberlin DW. Neonatal HSV Disease: Balancing the Low Incidence With the Need to Treat Promptly.Pediatrics. 2018 Feb;141(2). doi: 10.1542/peds.2017-3647. Epub 2018 Jan 3. PubMed PMID: 29298828.


Fields E, Neogi S, Schoettker PJ, Lail J. Using Lean methodologies to streamline processing of requests for durable medical equipment and supplies for children with complex conditions. Healthcare Published December 12, 2017. Accessed August 29, 2018.


Perkins J, Agrawal RProtecting Rights of Children With Medical Complexity in an Era of Spending Reduction. Pediatrics. 2018;141(Supplement 3):S242-S249. doi:10.1542/peds.2017-1284I.

Agrawal R, Stille CBuilding Systems That Work for Children With Complex Health Care Needs: Editor’s Note. Pediatrics. 2018;141(Supplement 3):S192-S194. doi:10.1542/peds.2017-1284C.

Turchi RM, Narayan A, Esquivel M, Serwint JR. Needs Assessment for a Medical Home Curriculum for Pediatric Residents. Glob Pediatr Heal. 2017;4:2333794X1774030. doi:10.1177/2333794X17740301.

Kuo DZ, McAllister JW, Rossignol L, Turchi RM, Stille CJCare Coordination for Children With Medical Complexity: Whose Care Is It, Anyway? Pediatrics. 2018;141(Supplement 3):S224-S232. doi:10.1542/peds.2017-1284G.

Allshouse C, Comeau M, Rodgers R, Wells NFamilies of Children With Medical Complexity: A View From the Front Lines. Pediatrics. 2018;141(Supplement 3):S195-S201. doi:10.1542/peds.2017-1284D.

Van Cleave J, Holifield C, Perrin JMPrimary Care Providers’ Use of a Child Psychiatry Telephone Support Program. Acad Pediatr. 2018;18(3):266-272. doi:10.1016/j.acap.2017.11.007.


Houtrow AJ, Zima BT. Framing childhood mental disorders within the context of disability. Disabil Health J. 2017;10(4):461-466. doi:10.1016/j.dhjo.2017.04.006.

Sobotka SA, Agrawal RK, Msall ME. Prolonged Hospital Discharge for Children with Technology Dependency: A Source of Health Care Disparities. Pediatr Ann. 2017;46(10):e365-e370. doi:10.3928/19382359-20170919-01.


Lail J, Fields E, Schoettker PJ. Quality Improvement Strategies for Population Management of Children With Medical Complexity. Pediatrics. 2017;140(3):e20170484. doi:10.1542/peds.2017-0484.


Barnert ES, Coller RJ, Nelson BB, et al. Experts’ Perspectives Toward a Population Health Approach for Children With Medical Complexity. Acad Pediatr. 2017;17(6):672-677. doi:10.1016/j.acap.2017.02.010.

Stille CJ, Honigfeld L, Heitlinger LA, Kuo DZ, Werner EJ. The Pediatric Primary Care-Specialist Interface: A Call For Action. J Pediatr. 2017;187:303-308. doi:10.1016/j.jpeds.2017.04.054.


Berry JG, Ash AS, Cohen E, Hasan F, Feudtner C, Hall M. Contributions of Children With Multiple Chronic Conditions to Pediatric Hospitalizations in the United States: A Retrospective Cohort Analysis. Hosp Pediatr. 2017;7(7):365-372. doi:10.1542/hpeds.2016-0179.


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Stefanie G Ames, Rebecca K Delaney, Amy J Houtrow, Claudia Delgado-Corcoran, Justin Alvey, Melissa H Watt, Nancy Murphy, Perceived Disability-Based Discrimination in Health Care for Children With Medical Complexity, Pediatrics