Secondary Data Center

About

Directed by Drs. Jay Berry (Boston Children’s Hospital, Harvard Medical School) and Matt Hall (Children’s Hospital Association), the CYSHCNet Secondary Data Center catalyzes retrospective analyses on prioritized topics using population-based databases and surveys.  Findings from the analyses inform prospective, multi-site network projects.  The findings also support the research of emerging investigators, including their career development award applications. 

Databases

  • All Payor Claims Databases
  • Kids’ Inpatient Database
  • IBM Watson Marketscan Medicaid Database
  • Medical Expenditure Panel Survey
  • National Inpatient Sample
  • National Survey of Children’s Health
  • Nationwide Readmissions Database
  • Pediatric Health Information System (PHIS)

Research

Topics of secondary data research in children and youth with special healthcare needs and in children with medical complexity include:

  • Adverse Childhood Events
  • Chronic Medication Use
  • Disability and Social Security Income
  • Emergency and Urgent Care
  • Health Services of Adolescents and Young Adults
  • Hospital Readmissions
  • Medical Equipment and Supplies
  • Mental Health
  • Multimorbidity
  • Opioid Exposures
  • Neonatal and Post-Acute Facility Care
  • Perioperative Care and Outcomes

Prospective Research Projects

Assessing Confidence at Times of Increased Vulnerability

Caregivers of children with medical complexity (CMC) may be able to accurately and efficiently evaluate clinically meaningful changes in their child’s health. Single-center studies have observed that parents’ lack of confidence in their child’s health has correlated with their child’s risk of readmission shortly after discharge. If caregiver confidence can be clinically monitored longitudinally in real time, then potential exists not only to link it with downstream health outcomes, but also to target timely interventions to help caregivers at high-risk moments. This pilot study is evaluating (1) feasibility and acceptability of an innovative health information technology to collected repeated measures of caregiver confidence of their CMC’s health over time; and (2) viability of constructing trajectories of caregiver confidence in CMC’s health and relationships among confidence, hospital utilization, and child and caregiver health-related quality of life.

Family and Social Attributes related to Emergency Department as Usual Source of Care for CYSHCN

This project will use the National Survey of Children’s Health to assess relationships between household composition (e.g., single vs. dual parent, number of siblings, etc.) as well as other familial and social attributes on the location of usual source of sick care for CYSHCN.

Co-Management Telehealth Study

Medical home components, including care management and shared care plans, are beneficial to children with medical complexities (CMC). Some CMC are co-managed by a community-based primary care physician (PCP) and a children’s hospital-based complex care provider (CCP). Better integration between these providers may improve efficiency, family experience, and quality of care, while leveraging the benefits of each location. This pilot study will compare video-conferencing among caregivers of CMC, PCPs, and CCPs to a traditional co-management process using several caregiver-reported and utilization outcomes

All Recent Publications by Network Members

For recent publications by members of the CYSHCNet, please visit our NCBI page here

Select Publications by Network Members

2019

Doshi P, Tilford JM, Ounpraseuth S, Kuo DZ, Payakachat N. Correction to: Do Insurance Mandates Affect Racial Disparities in Outcomes for Children with Autism?. Matern Child Health J. 2019 May;23(5):704-709. doi: 10.1007/s10995-018-02703-2. PubMed PMID: 30729362.

Abood KK, Paul MR, Kuo DJDeep Vein Thrombosis in a Young, Healthy Baseball Catcher: A Case Report and Review of the Literature. J Pediatr Hematol Oncol. 2019 May;41(4):321-323. doi: 10.1097/MPH.0000000000001113. PubMed PMID: 29401105.

Berry JG, Goodman DM, Coller RJ, Agrawal R, Kuo DZ, Cohen E, Thomson J, DeCourcey D, DeJong N, Agan A, Gaur D, Coquillette M, Crofton C, Houtrow A, Hall M. Association of Home Respiratory Equipment and Supply Use with Health Care Resource Utilization in Children. J Pediatr. 2019 Apr;207:169-175.e2. doi: 10.1016/j.jpeds.2018.11.046. Epub 2019 Jan 4. PubMed PMID: 30612815.

Neumeyer AM, Anixt J, Chan J, Perrin JM, Murray D, Coury DL, Bennett A, Farmer J, Parker RA. Identifying Associations Among Co-Occurring Medical Conditions in Children With Autism Spectrum Disorders. Acad Pediatr. 2019 Apr;19(3):300-306. doi: 10.1016/j.acap.2018.06.014. Epub 2018 Jul 24. PubMed PMID: 30053632.

Berry JG, Johnson C, Crofton C, Staffa SJ, DiTillio M, Leahy I, Salem J, Rangel SJ, Singer SJ, Ferrari L. Predicting Postoperative Physiologic Decline After Surgery. Pediatrics. 2019 Apr;143(4). doi: 10.1542/peds.2018-2042. Epub 2019 Mar 1. PubMed PMID: 30824493.

Chien AT, Toomey SL, Kuo DZ, Van Cleave J, Houtrow AJ, Okumura MJ, Westfall MY, Petty CR, Quinn JA, Kuhlthau KA, Schuster MA. Care Quality and Spending Among Commercially Insured Children With Disabilities. Acad Pediatr. 2019 Apr;19(3):291-299. doi: 10.1016/j.acap.2018.06.004. Epub 2018 Jun 19. PubMed PMID: 29932986.

Barnert ES, Abrams LS, Dudovitz R, Coker TR, Bath E, Tesema L, Nelson BB, Biely C, Chung PJWhat Is the Relationship Between Incarceration of Children and Adult Health Outcomes?. Acad Pediatr. 2019 Apr;19(3):342-350. doi: 10.1016/j.acap.2018.06.005. Epub 2018 Jun 21. PubMed PMID: 29935252; PubMed Central PMCID: PMC6309510.

Kuo DZThe Medical Home for Children with Medical Complexity: Back to Basics. J Pediatr. 2019 Mar;206:8-9. doi: 10.1016/j.jpeds.2018.11.050. Epub 2018 Dec 13. PubMed PMID: 30553538.

Francois LN, Yang J, Baer RJ, Chung PJ, Jelliffe-Pawlowski LL, Coker TR. Cross-Generational Contributors to Preterm Birth in California: Singletons Based on Race/Ethnicity. Am J Perinatol. 2019 Mar;36(4):383-392. doi: 10.1055/s-0038-1668554. Epub 2018 Aug 19. PubMed PMID: 30121941.

Coker TR, Porras-Javier L, Zhang L, Soares N, Park C, Patel A, Tang L, Chung PJ, Zima BT. A Telehealth-Enhanced Referral Process in Pediatric Primary Care: A Cluster Randomized Trial. Pediatrics. 2019 Mar;143(3). doi: 10.1542/peds.2018-2738. Epub 2019 Feb 15. PubMed PMID: 30770523.

Avritscher EBC, Mosquera RA, Tyson JE, Pedroza C, Samuels CL, Harris TS, Gomez-Rubio A, Navarro FA, Moody SB, Beyda RM. Post-Trial Sustainability and Scalability of the Benefits of a Medical Home for High-Risk Children with Medical Complexity. J Pediatr. 2019 Mar;206:232-239.e3. doi: 10.1016/j.jpeds.2018.10.035. Epub 2018 Dec 4. PubMed PMID: 30522751; PubMed Central PMCID: PMC6402793.

Dudovitz RN, Wong MD, Perez-Aguilar G, Kim G, Chung PJUpdate on How School Environments, Social Networks, and Self-Concept Impact Risky Health Behaviors. Acad Pediatr. 2019 Mar;19(2):133-134. doi: 10.1016/j.acap.2018.09.014. Epub 2018 Oct 2. Review. PubMed PMID: 30287394; PubMed Central PMCID: PMC6401257.

Gay JC, Hall M, Markham JL, Bettenhausen JL, Doupnik SK, Berry JGAssociation of Extending Hospital Length of Stay With Reduced Pediatric Hospital Readmissions. JAMA Pediatr. 2019 Feb 1;173(2):186-188. doi: 10.1001/jamapediatrics.2018.3815. PubMed PMID: 30592491; PubMed Central PMCID: PMC6439598.

Kelly MM, Hoonakker PLT, Coller RJInpatients Sign On: An Opportunity to Engage Hospitalized Patients and Caregivers Using Inpatient Portals. Med Care. 2019 Feb;57(2):98-100. doi: 10.1097/MLR.0000000000001043. PubMed PMID: 30520834; PubMed Central PMCID: PMC6331235.

Fein EH, Friedlander S, Lu Y, Pak Y, Sakai-Bizmark R, Smith LM, Chantry CJ, Chung PJPhototherapy for Neonatal Unconjugated Hyperbilirubinemia: Examining Outcomes by Level of Care. Hosp Pediatr. 2019 Feb;9(2):115-120. doi: 10.1542/hpeds.2018-0136. Epub 2019 Jan 3. PubMed PMID: 30606776; PubMed Central PMCID: PMC6350264.

Nackers A, Ehlenbach M, Kelly MM, Werner N, Warner G, Coller RJEncounters From Device Complications Among Children With Medical Complexity. Hosp Pediatr. 2019 Jan;9(1):6-15. doi: 10.1542/hpeds.2018-0103. Epub 2018 Dec 10. PubMed PMID: 30530805; PubMed Central PMCID: PMC6303085.

Sobotka SA, Gaur DS, Goodman DM, Agrawal RK, Berry JG, Graham RJ. Pediatric patients with home mechanical ventilation: The health services landscape. Pediatr Pulmonol. 2019 Jan;54(1):40-46. doi: 10.1002/ppul.24196. Epub 2018 Nov 20. PubMed PMID: 30461228.

Perrin JM, Asarnow JR, Stancin T, Melek SP, Fritz GK. Mental Health Conditions and Health Care Payments for Children with Chronic Medical Conditions. Acad Pediatr. 2019 Jan – Feb;19(1):44-50. doi: 10.1016/j.acap.2018.10.001. Epub 2018 Oct 10. PubMed PMID: 30315948.

Mattson G, Kuo DZPsychosocial Factors in Children and Youth With Special Health Care Needs and Their Families.Pediatrics. 2019 Jan;143(1). doi: 10.1542/peds.2018-3171. PubMed PMID: 30559121.

Glotzbecker M, Troy M, Miller P, Berry J, Cohen L, Gryzwna A, McCann ME, Hresko MT, Goobie S, Emans J, Brustowitz R, Snyder B, Hedequist D. Implementing a Multidisciplinary Clinical Pathway Can Reduce the Deep Surgical Site Infection Rate After Posterior Spinal Fusion in High-Risk Patients. Spine Deform. 2019 Jan;7(1):33-39. doi: 10.1016/j.jspd.2018.06.010. PubMed PMID: 30587318.

Coller RJ, Ehlenbach ML. Making Time to Coordinate Care for Children With Medical Complexity. Pediatrics. 2019 Jan;143(1). doi: 10.1542/peds.2018-2958. PubMed PMID: 30584058.

2018

Chang E, Chung PJ, Smith MC, Lee MJ, Gross DJ, Kao E, Sugiyama G. Can the Laparoscopic Approach for Adhesive Small Bowel Obstruction be Used in Octogenarians? An Observational Study Using ACS NSQIP. J Surg Res. 2019 Jan;233:345-350. doi: 10.1016/j.jss.2018.07.064. Epub 2018 Sep 7. PubMed PMID: 30502269.

Van Cleave J, Holifield C, Neumeyer AM, Perrin JM, Powers E, Van L, Kuhlthau KAExpanding the Capacity of Primary Care to Treat Co-morbidities in Children with Autism Spectrum Disorder. J Autism Dev Disord. 2018 Dec;48(12):4222-4230. doi: 10.1007/s10803-018-3630-x. PubMed PMID: 29982896.

Kogan MD, Vladutiu CJ, Schieve LA, Ghandour RM, Blumberg SJ, Zablotsky B, Perrin JM, Shattuck P, Kuhlthau KA, Harwood RL, Lu MC. The Prevalence of Parent-Reported Autism Spectrum Disorder Among US Children. Pediatrics. 2018 Dec;142(6). doi: 10.1542/peds.2017-4161. PubMed PMID: 30478241; PubMed Central PMCID: PMC6317762.

Grosse SD, Do TQN, Vu M, Feng LB, Berry JG, Sawicki GS. Healthcare expenditures for privately insured US patients with cystic fibrosis, 2010-2016. Pediatr Pulmonol. 2018 Dec;53(12):1611-1618. doi: 10.1002/ppul.24178. Epub 2018 Oct 31. PubMed PMID: 30381911.

Dudovitz RN, Chung PJ, Reber S, Kennedy D, Tucker JS, Shoptaw S, Dosanjh KK, Wong MD. Assessment of Exposure to High-Performing Schools and Risk of Adolescent Substance Use: A Natural Experiment. JAMA Pediatr. 2018 Dec 1;172(12):1135-1144. doi: 10.1001/jamapediatrics.2018.3074. PubMed PMID: 30383092; PubMed Central PMCID: PMC6350909.

Leahy I, Berry JG, Johnson CJ, Crofton C, Staffa SJ, Ferrari L. Does the Current American Society of Anesthesiologists Physical Status Classification Represent the Chronic Disease Burden in Children Undergoing General Anesthesia?.Anesth Analg. 2018 Nov 21;. doi: 10.1213/ANE.0000000000003911. [Epub ahead of print] PubMed PMID: 30489312.

Brenner M, O’Shea MP, McHugh R, Clancy A, Larkin P, Luzi D, Pecoraro F, Olaso EM, Lignou S, Alma M, Satherley RM, Tamburis O, Warters A, Wolfe I, Hilliard C, Berry J, Alexander D, Rigby M, Blair M. Principles for provision of integrated complex care for children across the acute-community interface in Europe. Lancet Child Adolesc Health. 2018 Nov;2(11):832-838. doi: 10.1016/S2352-4642(18)30270-0. PubMed PMID: 30336897.

Kelly MM, Coller RJ, Kohler JE, Zhao Q, Sklansky DJ, Shadman KA, Thurber A, Barreda CB, Edmonson MB. Trends in Hospital Treatment of Empyema in Children in the United States. J Pediatr. 2018 Nov;202:245-251.e1. doi: 10.1016/j.jpeds.2018.07.004. Epub 2018 Aug 28. PubMed PMID: 30170858.

Brenner M, O’Shea MP, Larkin P, Luzi D, Pecoraro F, Tamburis O, Berry J, Alexander D, Rigby M, Blair M. Management and integration of care for children living with complex care needs at the acute-community interface in Europe. Lancet Child Adolesc Health. 2018 Nov;2(11):822-831. doi: 10.1016/S2352-4642(18)30272-4. PubMed PMID: 30336896.

Tieder JS, Sisk B, Hudak M, Richerson JE, Perrin JMGeneral Pediatricians and Value-Based Payments. Pediatrics. 2018 Oct;142(4). doi: 10.1542/peds.2018-0502. PubMed PMID: 30237230.

Schickedanz A, Chung PJAddressing Family Homelessness in Pediatrics: Progress and Possibility. Pediatrics. 2018 Oct;142(4). doi: 10.1542/peds.2018-2328. Epub 2018 Sep 3. PubMed PMID: 30177512.

Contreras S, Porras-Javier L, Zima BT, Soares N, Park C, Patel A, Chung PJ, Coker TR. Development of a Telehealth-Coordinated Intervention to Improve Access to Community-Based Mental Health. Ethn Dis. 2018;28(Suppl 2):457-466. doi: 10.18865/ed.28.S2.457. eCollection 2018. PubMed PMID: 30202199; PubMed Central PMCID: PMC6128350.

Berry JG, Berry SD. Caring for Patients With Neurological Impairment: Conversations Between a Pediatrician and Geriatrician. JAMA Pediatr. 2018 Sep 1;172(9):795-796. doi: 10.1001/jamapediatrics.2018.1079. PubMed PMID: 29971353.

Richardson T, Rodean J, Harris M, Berry J, Gay JC, Hall M. Development of Hospitalization Resource Intensity Scores for Kids (H-RISK) and Comparison across Pediatric Populations. J Hosp Med. 2018 Sep 1;13(9):602-608. doi: 10.12788/jhm.2948. Epub 2018 Apr 25. PubMed PMID: 29694460.

Barnert ES, Coller RJ, Nelson BB, Thompson LR, Klitzner TS, Szilagyi M, Breck AM, Chung PJA Healthy Life for a Child With Medical Complexity: 10 Domains for Conceptualizing Health. Pediatrics. 2018 Sep;142(3). doi: 10.1542/peds.2018-0779. Epub 2018 Aug 17. PubMed PMID: 30120101.

Barnert ES, Chung PJResponding to Parental Incarceration As a Priority Pediatric Health Issue. Pediatrics. 2018 Sep;142(3). doi: 10.1542/peds.2018-1923. Epub 2018 Jul 9. PubMed PMID: 29987167; PubMed Central PMCID: PMC6317561.

Berry JG, Glader L, Stevenson RD, Hasan F, Crofton C, Hussain K, Hall M. Associations of Coexisting Conditions with Healthcare Spending for Children with Cerebral Palsy. J Pediatr. 2018 Sep;200:111-117.e1. doi: 10.1016/j.jpeds.2018.04.021. Epub 2018 May 8. PubMed PMID: 29752173.

Bucholz EM, Gay JC, Hall M, Harris M, Berry JGTiming and Causes of Common Pediatric Readmissions. J Pediatr. 2018 Sep;200:240-248.e1. doi: 10.1016/j.jpeds.2018.04.044. Epub 2018 Jun 7. PubMed PMID: 29887387.

Bettenhausen JL, Hall M, Colvin JD, Puls HT, Chung PJThe Effect of Lowering Public Insurance Income Limits on Hospitalizations for Low-Income Children. Pediatrics. 2018 Aug;142(2). doi: 10.1542/peds.2017-3486. Epub 2018 Jul 9. PubMed PMID: 29987166.

Jones KA, Do S, Porras-Javier L, Contreras S, Chung PJ, Coker TR. Feasibility and Acceptability in a Community-Partnered Implementation of CenteringParenting for Group Well-Child Care. Acad Pediatr. 2018 Aug;18(6):642-649. doi: 10.1016/j.acap.2018.06.001. Epub 2018 Jun 9. PubMed PMID: 29890229.

Perrin JMCan Mental Health Parity Help Address the Mental/Behavioral Gap in Child Health?. Pediatrics. 2018 Aug;142(2). doi: 10.1542/peds.2018-1572. PubMed PMID: 30037973.

Coller RJ, Klitzner TS, Lerner CF, Nelson BB, Thompson LR, Zhao Q, Saenz AA, Ia S, Flores-Vazquez J, Chung PJ. Complex Care Hospital Use and Postdischarge Coaching: A Randomized Controlled Trial. Pediatrics. 2018 Aug;142(2). doi: 10.1542/peds.2017-4278. Epub 2018 Jul 11. PubMed PMID: 29997169; PubMed Central PMCID: PMC6317544.

Shumskiy I, Richardson T, Brar S, Hall M, Cox J, Crofton C, Peltz A, Samuels-Kalow M, Alpern ER, Neuman MI, Berry JG.Well-Child Visits of Medicaid-Insured Children with Medical Complexity. J Pediatr. 2018 Aug;199:223-230.e2. doi: 10.1016/j.jpeds.2018.04.003. Epub 2018 May 8. PubMed PMID: 29752175.

Schickedanz A, Halfon N, Sastry N, Chung PJParents’ Adverse Childhood Experiences and Their Children’s Behavioral Health Problems. Pediatrics. 2018 Aug;142(2). doi: 10.1542/peds.2018-0023. Epub 2018 Jul 9. PubMed PMID: 29987168; PubMed Central PMCID: PMC6317990.

De Jesus-Rojas W, Mosquera RA, Samuels C, Eapen J, Gonzales T, Harris T, McKay S, Boricha F, Pedroza C, Aneji C, Khan A, Jon C, McBeth K, Stark J, Yadav A, Tyson JE. The Effect of Comprehensive Medical Care on the Long-Term Outcomes of Children Discharged from the NICU with Tracheostomy. Open Respir Med J. 2018;12:39-49. doi: 10.2174/1874306401812010039. eCollection 2018. PubMed PMID: 30197702; PubMed Central PMCID: PMC6110063.

Knutsen J, Crossman M, Perrin J, Shui A, Kuhlthau K. Sex differences in restricted repetitive behaviors and interests in children with autism spectrum disorder: An Autism Treatment Network study. Autism. 2018 Jul 26;:1362361318786490. doi: 10.1177/1362361318786490. [Epub ahead of print] PubMed PMID: 30047281; PubMed Central PMCID: PMC6348057.

Webber S, Butteris SM, Houser L, Coller K, Coller RJAsset-Based Community Development as a Strategy for Developing Local Global Health Curricula. Acad Pediatr. 2018 Jul;18(5):496-501. doi: 10.1016/j.acap.2018.02.001. Epub 2018 Feb 7. PubMed PMID: 29427688.

Bryant-Moore K, Haynes T, Kuo DZ, Stewart MK, Yeary KHK, Smith J, Turner J, Ounpraseuth ST, Sullivan G, McCoy S, Hudson B, Harris K. Lessons learned from using an audience response system in a community setting for research data collection. Public Health Nurs. 2018 Jul;35(4):353-359. doi: 10.1111/phn.12397. Epub 2018 Mar 22. PubMed PMID: 29566271; PubMed Central PMCID: PMC6055995.

Doupnik SK, Lawlor J, Zima BT, Coker TR, Bardach NS, Rehm KP, Gay JC, Hall M, Berry JGMental Health Conditions and Unplanned Hospital Readmissions in Children. J Hosp Med. 2018 Jul;13(7):445-452. doi: 10.12788/jhm.2910. PubMed PMID: 29964274.

Wong CA, Perrin JM, McClellan M. Making the Case for Value-Based Payment Reform in Children’s Health Care. JAMA Pediatr. 2018 Jun 1;172(6):513-514. doi: 10.1001/jamapediatrics.2018.0129. PubMed PMID: 29630698.

Kelly MM, Coller RJ, Hoonakker PL. Inpatient Portals for Hospitalized Patients and Caregivers: A Systematic Review. J Hosp Med. 2018 Jun 1;13(6):405-412. doi: 10.12788/jhm.2894. Epub 2017 Dec 20. PubMed PMID: 29261819; PubMed Central PMCID: PMC6136247.

Colvin JD, Hall M, Thurm C, Bettenhausen JL, Gottlieb L, Shah SS, Fieldston ES, Goldin AB, Melzer SM, Conway PH, Chung PJHypothetical Network Adequacy Schemes For Children Fail To Ensure Patients’ Access To In-Network Children’s Hospital. Health Aff (Millwood). 2018 Jun;37(6):873-880. doi: 10.1377/hlthaff.2017.1339. PubMed PMID: 29863927.

Kuo DZ, Berry JG, Hall M, Lyle RE, Stille CJ. Health-care spending and utilization for children discharged from a neonatal intensive care unit. J Perinatol. 2018 Jun;38(6):734-741. doi: 10.1038/s41372-018-0055-5. Epub 2018 Feb 15. PubMed PMID: 29449613.

Causey J, Gonzales T, Yadav A, Hashmi S, De Jesus-Rojas W, Jon C, Haque I, Johnston R, Stark J, McBeth K, Colasurdo G, Mosquera RCharacteristics and Outcomes of Children with Clinical History of Atopic Versus Non-atopic Asthma Admitted to a Tertiary Pediatric Intensive Care Unit. Open Respir Med J. 2018;12:21-28. doi: 10.2174/1874306401812010021. eCollection 2018. PubMed PMID: 30008967; PubMed Central PMCID: PMC6008982.

Datar A, Chung PJChildhood Self-Control and Adolescent Obesity: Evidence from Longitudinal Data on a National Cohort. Child Obes. 2018 May/Jun;14(4):238-247. doi: 10.1089/chi.2017.0217. Epub 2018 May 29. PubMed PMID: 29812975.

deJong NA, Richardson T, Chandler N, Steiner MJ, Hall M, Berry JOutpatient Visits Before Ambulatory Care-Sensitive Hospitalization of Children Receiving Medicaid. Acad Pediatr. 2018 May – Jun;18(4):390-396. doi: 10.1016/j.acap.2017.09.015. Epub 2017 Sep 28. PubMed PMID: 28964877.

Rehm KP, Brittan MS, Stephens JR, Mummidi P, Steiner MJ, Gay JC, Ayubi SA, Gujral N, Mittal V, Dunn K, Chiang V, Hall M, Blaine K, O’Neill M, McBride S, Rogers J, Berry JGIssues Identified by Postdischarge Contact after Pediatric Hospitalization: A Multisite Study. J Hosp Med. 2018 Apr;13(4):236-242. doi: 10.12788/jhm.2934. Epub 2018 Feb 2. PubMed PMID: 29394301.

Samuels-Kalow M, Peltz A, Rodean J, Hall M, Alpern ER, Aronson PL, Berry JG, Shaw KN, Morse RB, Freedman SB, Cohen E, Simon HK, Shah SS, Katsogridakis Y, Neuman MI. Predicting Low-Resource-Intensity Emergency Department Visits in Children. Acad Pediatr. 2018 Apr;18(3):297-304. doi: 10.1016/j.acap.2017.12.012. Epub 2018 Jan 10. PubMed PMID: 29331346.

Markham JL, Hall M, Gay JC, Bettenhausen JL, Berry JGLength of Stay and Cost of Pediatric Readmissions. Pediatrics.2018 Apr;141(4). doi: 10.1542/peds.2017-2934. Epub 2018 Mar 9. PubMed PMID: 29523706.

Van Cleave J, Holifield C, Perrin JMPrimary Care Providers’ Use of a Child Psychiatry Telephone Support Program. Acad Pediatr. 2018 Apr;18(3):266-272. doi: 10.1016/j.acap.2017.11.007. Epub 2017 Nov 29. PubMed PMID: 29197641.

Barnert ES, Abrams LS, Tesema L, Dudovitz R, Nelson BB, Coker T, Bath E, Biely C, Li N, Chung PJChild incarceration and long-term adult health outcomes: a longitudinal study. Int J Prison Health. 2018 Mar 12;14(1):26-33. doi: 10.1108/IJPH-09-2016-0052. PubMed PMID: 29480767; PubMed Central PMCID: PMC6527101.

Kuo DZ, McAllister JW, Rossignol L, Turchi RM, Stille CJCare Coordination for Children With Medical Complexity: Whose Care Is It, Anyway?. Pediatrics. 2018 Mar;141(Suppl 3):S224-S232. doi: 10.1542/peds.2017-1284G. Review. PubMed PMID: 29496973.

Cohen E, Berry JG, Sanders L, Schor EL, Wise PH. Status Complexicus? The Emergence of Pediatric Complex Care.Pediatrics. 2018 Mar;141(Suppl 3):S202-S211. doi: 10.1542/peds.2017-1284E. Review. PubMed PMID: 29496971.

Fairbrother G, Raphael JL, Chung PJ, Szilagyi PG. Medicaid in Transition: Proposed Changes in Funding Mechanisms and Their Consequences. Acad Pediatr. 2018 Mar;18(2):125-128. doi: 10.1016/j.acap.2017.11.008. Epub 2017 Dec 7. PubMed PMID: 29225133.

Feudtner C, Schall T, Nathanson P, Berry JEthical Framework for Risk Stratification and Mitigation Programs for Children With Medical Complexity. Pediatrics. 2018 Mar;141(Suppl 3):S250-S258. doi: 10.1542/peds.2017-1284J. PubMed PMID: 29496976.

Blaine K, Rogers J, OʼNeill MR, McBride S, Faerber J, Feudtner C, Berry JGClinician Perceptions of the Importance of Hospital Discharge Components for Children. J Healthc Qual. 2018 Mar/Apr;40(2):79-88. doi: 10.1097/JHQ.0000000000000084. PubMed PMID: 29329135.

Coller RJ, Kelly MM, Ehlenbach ML, Goyette E, Warner G, Chung PJ. Hospitalizations for Ambulatory Care-Sensitive Conditions among Children with Chronic and Complex Diseases. J Pediatr. 2018 Mar;194:218-224. doi: 10.1016/j.jpeds.2017.10.038. Epub 2017 Dec 1. PubMed PMID: 29198530; PubMed Central PMCID: PMC5826824.

Russell CJ, Thurm C, Hall M, Simon TD, Neely MN, Berry JGRisk factors for hospitalizations due to bacterial respiratory tract infections after tracheotomy. Pediatr Pulmonol. 2018 Mar;53(3):349-357. doi: 10.1002/ppul.23938. Epub 2018 Jan 4. PubMed PMID: 29314789; PubMed Central PMCID: PMC5815950.

Berry JG, Gay JC, Joynt Maddox K, Coleman EA, Bucholz EM, O’Neill MR, Blaine K, Hall M. Age trends in 30 day hospital readmissions: US national retrospective analysis. BMJ. 2018 Feb 27;360:k497. doi: 10.1136/bmj.k497. PubMed PMID: 29487063; PubMed Central PMCID: PMC5827573.

Gay JC, Zima BT, Coker TR, Doupnik SK, Hall M, Rodean J, O’Neill M, Morse R, Rehm KP, Berry JG, Bardach NS. Postacute Care after Pediatric Hospitalizations for a Primary Mental Health Condition. J Pediatr. 2018 Feb;193:222-228.e1. doi: 10.1016/j.jpeds.2017.09.058. Epub 2017 Nov 20. PubMed PMID: 29162345.

Mahant S, Berry JG, Kimberlin DW. Neonatal HSV Disease: Balancing the Low Incidence With the Need to Treat Promptly.Pediatrics. 2018 Feb;141(2). doi: 10.1542/peds.2017-3647. Epub 2018 Jan 3. PubMed PMID: 29298828.

Coller RJ, Ahrens S, Ehlenbach ML, Shadman KA, Chung PJ, Lotstein D, LaRocque A, Sheehy A. Transitioning from General Pediatric to Adult-Oriented Inpatient Care: National Survey of US Children’s Hospitals. J Hosp Med. 2018 Jan;13(1):13-20. doi: 10.12788/jhm.2923. PubMed PMID: 29309437; PubMed Central PMCID: PMC6492557.

2017

Berry JG, Ash AS, Cohen E, Hasan F, Feudtner C, Hall M. Contributions of Children With Multiple Chronic Conditions to Pediatric Hospitalizations in the United States: A Retrospective Cohort Analysis. Hosp Pediatr. 2017;7(7):365-372. doi:10.1542/hpeds.2016-0179.
Van Cleave J, Holifield C, Perrin JM. Primary Care Providers’ Use of a Child Psychiatry Telephone Support Program. Acad Pediatr. 2018;18(3):266-272. doi:10.1016/j.acap.2017.11.007.
Stille CJ, Honigfeld L, Heitlinger LA, Kuo DZ, Werner EJ. The Pediatric Primary Care-Specialist Interface: A Call For Action. J Pediatr. 2017;187:303-308. doi:10.1016/j.jpeds.2017.04.054.
Allshouse C, Comeau M, Rodgers R, Wells N. Families of Children With Medical Complexity: A View From the Front Lines. Pediatrics. 2018;141(Supplement 3):S195-S201. doi:10.1542/peds.2017-1284D.
Coller RJ, Kelly MM, Ehlenbach ML, Goyette E, Warner G, Chung PJ. Hospitalizations for Ambulatory Care-Sensitive Conditions among Children with Chronic and Complex Diseases. J Pediatr. 2018;194:218-224. doi:10.1016/j.jpeds.2017.10.038.
Barnert ES, Coller RJ, Nelson BB, et al. Experts’ Perspectives Toward a Population Health Approach for Children With Medical Complexity. Acad Pediatr. 2017;17(6):672-677. doi:10.1016/j.acap.2017.02.010.
Perkins J, Agrawal R. Protecting Rights of Children With Medical Complexity in an Era of Spending Reduction. Pediatrics. 2018;141(Supplement 3):S242-S249. doi:10.1542/peds.2017-1284I.
Sobotka SA, Agrawal RK, Msall ME. Prolonged Hospital Discharge for Children with Technology Dependency: A Source of Health Care Disparities. Pediatr Ann. 2017;46(10):e365-e370. doi:10.3928/19382359-20170919-01.
Agrawal R, Stille C. Building Systems That Work for Children With Complex Health Care Needs: Editor’s Note. Pediatrics. 2018;141(Supplement 3):S192-S194. doi:10.1542/peds.2017-1284C.
Kuo DZ, McAllister JW, Rossignol L, Turchi RM, Stille CJ. Care Coordination for Children With Medical Complexity: Whose Care Is It, Anyway? Pediatrics. 2018;141(Supplement 3):S224-S232. doi:10.1542/peds.2017-1284G.
Turchi RM, Narayan A, Esquivel M, Serwint JR. Needs Assessment for a Medical Home Curriculum for Pediatric Residents. Glob Pediatr Heal. 2017;4:2333794X1774030. doi:10.1177/2333794X17740301.
Forrest CB, Ravens-Sieberer U, Devine J, et al. Development and Evaluation of the PROMIS® Pediatric Positive Affect Item Bank, Child-Report and Parent-Proxy Editions. J Happiness Stud. 2017;19(3):699-718. doi:10.1007/s10902-016-9843-9.
Langer CS, Antonelli RC, Chamberlain L, Pan RJ, Keller D. Evolving Federal and State Health Care Policy: Toward a More Integrated and Comprehensive Care-Delivery System for Children With Medical Complexity. Pediatrics. 2018;141(Supplement 3):S259-S265. doi:10.1542/peds.2017-1284K.
Lozano P, Houtrow A. Supporting Self-Management in Children and Adolescents With Complex Chronic Conditions. Pediatrics. 2018;141(Supplement 3):S233-S241. doi:10.1542/peds.2017-1284H.
Houtrow AJ, Zima BT. Framing childhood mental disorders within the context of disability. Disabil Health J. 2017;10(4):461-466. doi:10.1016/j.dhjo.2017.04.006.
Lail J, Fields E, Schoettker PJ. Quality Improvement Strategies for Population Management of Children With Medical Complexity. Pediatrics. 2017;140(3):e20170484. doi:10.1542/peds.2017-0484.
Lail J, Schoettker PJ, White DL, Mehta B, Kotagal UR. Applying the Chronic Care Model to improve care and outcomes at a pediatric medical center. Jt Comm J Qual Patient Saf. 2017;43(3):101-112. doi:10.1016/j.jcjq.2016.12.002.
Fields E, Neogi S, Schoettker PJ, Lail J. Using Lean methodologies to streamline processing of requests for durable medical equipment and supplies for children with complex conditions. Healthcare. http://www.ncbi.nlm.nih.gov/pubmed/29246539. Published December 12, 2017. Accessed August 29, 2018.
Hoagwood K, Peth-Pierce R, Glaeser E, Whitmyre E, Shorter P, Vardanian MM.  Implementing Evidence-Based Psychotherapies for Children and Adolescents within Complex Mental Health Systems.  In Weisz J & Kazdin AE (eds).  Evidence-Based Psychotherapies for Children and Adolescents, Third Edition.  NewYork :  NY, Guilford Press; 2017.