Our Research

Secondary Data Center (SDC)

Directed by Drs. Jay Berry (Boston Children’s Hospital, Harvard Medical School) and Matt Hall (Children’s Hospital Association), the CYSHCNet Secondary Data Center catalyzes retrospective analyses on prioritized topics using population-based databases and surveys.  Findings from the analyses inform prospective, multi-site network projects.  The findings also support the research of emerging investigators, including their career development award applications.

  • All Payor Claims Databases
  • Kids’ Inpatient Database
  • IBM Watson Marketscan Medicaid Database
  • Medical Expenditure Panel Survey
  • National Inpatient Sample
  • National Survey of Children’s Health
  • Nationwide Readmissions Database
  • Pediatric Health Information System (PHIS)


Topics of secondary data research in children and youth with special healthcare needs and in children with medical complexity include:

  • Adverse Childhood Events
  • Chronic Medication Use
  • Disability and Social Security Income
  • Emergency and Urgent Care
  • Health Services of Adolescents and Young Adults
  • Hospital Readmissions
  • Medical Equipment and Supplies
  • Mental Health
  • Multimorbidity
  • Opioid Exposures
  • Neonatal and Post-Acute Facility Care
  • Perioperative Care and Outcomes

SDC Project Briefs

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  • Low resource use emergency department visits in children with medical complexity
  • Age trends in types of hospitals used by adolescents and young adults with complex chronic conditions
  • Characteristics and healthcare use of children using medicaid enrolled due to disability
  • Multimorbidity in children with neurological impairment 
  • Mental health conditions in children with medical complexity
  • Hospital readmission and emergency department visits after discharge from neonatal intensive care
  • Respiratory illness in children with neurological impairment
  • Quality of insurance in CYSHCN living 200-400% of the federal poverty level
  • Medical complexity and profit/loss of inpatient care for children’s hospitals
  • Healthcare encounter days of children covered y Medicaid
  • Emergency department reliance for respiratory infection in children covered by medicaid
  • Perioperative health services for children with neurological impairment
  • Home health services and personnel received by children covered by Medicaid
  • Chronic mental and physical health condition in children enrolled in Medicaid who receive Social Security income