• Dr. Jamie Feinstein interviewed by Popular Science Magazine for his work on opioid prescribing to CYSHCN
    Dr. Jamie Feinstein interviewed by Popular Science Magazine for his work on opioid prescribing to CYSHCN.

News

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OPTIMIZE

THE HEALTH OF CHILDREN AND YOUTH WITH SPECIAL HEALTH CARE NEEDS THROUGH MULTI-SITE HEALTH SYSTEMS RESEARCH

DEFINE

THE NATIONAL RESEARCH AGENDA  ON HEALTH SYSTEMS FOR CHILDREN AND YOUTH WITH SPECIAL HEALTH CARE NEEDS

TRAIN

EMERGING INVESTIGATORS ON HEALTH SYSTEMS RESEARCH FOR CHILDREN AND YOUTH WITH SPECIAL HEALTH CARE NEEDS

INCLUDE

CHILDREN AND YOUTH WITH SPECIAL HEALTH CARE NEEDS AND FAMILY LEADERS IN EVERY RESEARCH STUDY

About the Network

The U.S. health system, historically, has not been well equipped to serve children and youth with special health care needs (CYSHCN). Network research holds great promise for improving health systems for CYSHCN in a way that enables learning across multiple sites and systems and creation and application of new knowledge that is nationally generalizable. In 2017, the U.S. Maternal and Child Health Bureau, Health Resources and Services Administration entered into a Cooperative Agreement to establish a national Health Systems Research Network for CYSHCN to promote and conduct this research.

Who We Are

Our 9 network sites have deep front-line clinical care experiences with 300,000 active CYSHCN patients across the care continuum with over 1,500,000 outpatient; 225,000 emergency department visits; and 50,000 inpatient annual visits. Network researchers across the 9 sites are proficient in myriad designs, including case-control, time series, clinical trials, difference-in-difference, focus group, interview, survey, systematic review, and other research methods. The network hosts a secondary data center of local, regional, and national healthcare claims and surveys for CYSHCN.

Sites

Boston Children’s Hospital (site: PI)
Children’s Hospital Colorado (site: PI)

American Family Children’s Hospital
Ann & Robert H. Lurie Children’s Hospital of Chicago
Children’s Memorial Hermann (Houston Children’s)
MassGeneral Hospital for Children

Monroe Carell Jr. Children’s Hospital
Oishei Children’s Hospital of Buffalo
UCLA Mattel Children’s Hospital
Children’s Hospital Association
Family Voices
Maternal and Child Health Bureau 

Executive Committee

Christopher Stille, MD, MPH, Network Director
Christopher Stille, MD, MPH, Network Director
Jay Berry, MD, MPH, Associate Network Director
Jay Berry, MD, MPH, Associate Network Director
Charlene Shelton, RN, MPA, PhD, Program Manager
Charlene Shelton, RN, MPA, PhD, Program Manager
Nora Wells
Nora Wells
Clarissa Hoover, MPH
Clarissa Hoover, MPH
James Perrin, MD
James Perrin, MD
Paul Chung, MD, MS
Paul Chung, MD, MS
Karen Kuhlthau, PhD
Karen Kuhlthau, PhD

Steering Committee

Rishi Agrawal, MD, MPH
Rishi Agrawal, MD, MPH
Ryan Coller, MD, MPH
Ryan Coller, MD, MPH
Meg Comeau, MHA
Meg Comeau, MHA
David E. Hall, MD
David E. Hall, MD
Dennis Kuo, MD, MHS
Dennis Kuo, MD, MHS
Ricardo Mosquera, MD
Ricardo Mosquera, MD
Kate Taft, MPH
Kate Taft, MPH
Debra Waldron, MD, MPH, FAAP
Debra Waldron, MD, MPH, FAAP
Joanna Thomson, MD, MPH
Joanna Thomson, MD, MPH

Advisory Committee

Carolyn Allshouse
Carolyn Allshouse
Debbie Chang, MPH
Debbie Chang, MPH
Christopher Forrest, MD, PhD
Christopher Forrest, MD, PhD
Amy Houtrow, PhD
Amy Houtrow, PhD
Siem Ia, CPNP, MS, RN
Siem Ia, CPNP, MS, RN
Jennifer Kyle, RN, MA
Jennifer Kyle, RN, MA
Jennifer Lail, MD
Jennifer Lail, MD
Lisa Lambert
Lisa Lambert
Beth McManus, ScD, MPH, MS
Beth McManus, ScD, MPH, MS
Megumi Okumura, MD, MAS
Megumi Okumura, MD, MAS
Edward Schor, MD
Edward Schor, MD
Edwin Simpser, MD, FAAP
Edwin Simpser, MD, FAAP
Renee Turchi, MD, MPH, FAAP
Renee Turchi, MD, MPH, FAAP
Mallory Cyr, MPH
Mallory Cyr, MPH
Patience White, MD, MA
Patience White, MD, MA