As part of the research team, you bring your first-hand experience and the experiences of many other families. These experiences help researchers design health-related research that is important to youth and families. Youth and families also help researchers understand the results of a study, and put the results into practice in the real world.
In turn, you bring the perspective of someone very close to, but not a part of the health care system. You are an expert in navigating the parts of the health care system that are important to you or your child. You know how the system really works as opposed to how it was designed to work.