News, Events, Webinars & Conference Information from Across Our Network

NEWS

Our First External Grant! - October 2019

The Lucile Packard Foundation approved our grant proposal for the national research agenda supplement! Huge thanks to everyone who made this happen and to the writing groups whose work will make the agenda come to life. Thanks, of course to the Foundation and their generosity!

PRESS RELEASE

CYSHCNet - July 2019

Colorado and Boston Hospitals Lead National Network to Improve Health of Children and Youth with Special Needs  July 12, 2019 - A new research network for children and youth with special health care needs (CYSHCNet), led by researchers at the University of Colorado School of Medicine, Children’s Hospital Colorado and Boston Children’s Hospital, will lead, promote and coordinate national research activities to improve their systems of care. Funded through the U.S. Department of Health and Human Services, the Health Resources and Services Administration (HRSA), the Maternal and Child Health Bureau, the 11-site research network will lead, coordinate and promote health systems research for CYSHCN. The network’s work will strengthen the base of evidence related to key components of a comprehensive, high-quality system of care for CYSHCN. It will respond to a need among CYSHCN and their families for evidence about how best to deliver and coordinate care for their conditions. Click for more!

CONFERENCE

Eleven abstracts accepted for presentation at PAS (February 2019)
Pediatric Academic Societies (PAS) 2020 Meeting - April 29 - May 6, 2020

This premier international meeting will bring together pediatricians—from generalists and community practitioners to sub-specialty researchers and academics—and other health care providers united by a common mission of improve the health and well-being of children in US and worldwide. Format: State-of-the art plenary sessions, panel discussions, Meet the Professor breakfast sessions, basic-clinical-translational round tables, debates/pro-con discussions, hot topic/topic symposia, industry sponsored symposia, workshops, special interest groups meetings, core curriculum fellows’ series and poster presentations. Click for more!

CONFERENCE

Association of Maternal and Child Health Programs - March 21 - 24, 2020

The AMCHP Annual Conference is the ideal venue to present your ideas, research, innovative programming, best practices and effective outreach strategies to MCH and other public health practitioners. Our audience includes directors of state programs, federal officials, advocates, family leaders, researchers and health care providers. Click for more!

CONFERENCE

2019 APHA Annual Meeting and Expo - November 2, 2019

APHA's Annual Meeting and Expo is the largest and most influential annual gathering of public health professionals. Nearly 13,000 attendees join us each year to present, learn and find inspiration. Click for more!

CONFERENCE

AAP Experience National Conference and Exhibition - October 25 - 29, 2019

The AAP National Conference & Exhibition is the premier venue for pediatric health care professionals to come together and share their passion for the health of all children. The meeting draws more than 10,000 professionals and offers over 400 sessions in 70 topic areas from interactive, hands-on workshops to thought-provoking plenary sessions. The 2019 National Conference will feature plenary sessions on front-line topics such as advocacy, interactive media, climate change, physician wellness, substance use and housing security. Click for more!

WEBINAR

The Next Steps to Improving Home Health Care for Children with Medical Complexity - October 23, 2019

More children are surviving serious chronic conditions than ever before, which means home health care is essential to supporting their care. Children may need home health care to help with medication administration, respiratory care, or activities of daily living. Recent shortages in home health care providers have led to additional family burden. Addressing workforce issues, from competitive wages and better training, to telemedicine, and alignment with adult-focused care initiatives can help alleviate undue family hardship. Join us for a discussion of potential solutions from the perspectives of parent advocates, home health care providers, pediatricians, and state officials. Featuring CYSHCNet Youth & Family Research Partner: Cara Coleman. Click for more!

NEWS

Dr. Jamie Feinstein interviewed by Popular Science Magazine for his work on opioid prescribing to CYSHCN
Dr. Jamie Feinstein interviewed by Popular Science Magazine for his work on opioid prescribing to CYSHCN (May 2019)

Dr. Feinstein and his colleagues’ study on opioid prescriptions for children and youth with special health care needs has been published in the journal Pediatrics. The findings show that opioid exposure in CYSHCN is common, especially with multiple chronic condition and polypharmacy. Dr. Feinstein anticipates that this study will inform opioid prescribing guidelines and policies for CYSHCN at the hospital and governmental levels. To ensure the safety of opioid use in CYSHCN, the development of evidence-based opioid prescribing guidelines is paramount, including best practices for follow-up evaluation. Dr. Feinstein was interviewed by Popular Science magazine about his study. Click for more!

NEWS

Network Young Investigator, Dr. Ashley Jenkins, receives the 2018 Academic Pediatric Association Young Investigator Award and the Society for General Internal Medicine Founders Award (April 2019)
Network Young Investigator, Dr. Ashley Jenkins, receives the 2018 Academic Pediatric Association Young Investigator Award and the Society for General Internal Medicine Founders Award (April 2019)

Ashley Jenkins, MD is a current Internal Medicine-Pediatrics hospital medicine and research fellow at the Cincinnati Children’s and University of Cincinnati Medical Centers. She is the recipient of the 2018 Academic Pediatric Association Young Investigator award and the Society for General Internal Medicine Founders Award for junior investigators to support work focused on understanding factors associated with timing of transition from pediatric to adult inpatient care for adolescents and young adults with chronic conditions of childhood. Dr. Jenkins is collaborating with the CYSHCNet Secondary Data Center on her work.

NEWS

Eleven abstracts accepted for presentation at PAS (February 2019)
Eleven abstracts accepted for presentation at PAS (February 2019)

Eleven abstracts were accepted for poster or platform presentation at PAS by network researchers. The projects include:

Variation in Hospitalization Rates Following Emergency Department Visits in Children with Medical Complexity (Ryan Coller, poster)

Health System Research Priorities for U.S. Children and Youth with Special Health Care Needs: Expert Perspectives (Ryan Coller, platform)

Chronic Medication Use in Children Insured by Medicaid: A Multi-State Retrospective Cohort Study (Jamie Feinstein, poster)

Re-Designed Perioperative Care for Children with Medical Complexity Undergoing Spinal Fusion for Scoliosis (Jay Berry, poster)

Shared Surgical Decision Making for Children with Medical Complexity: Parent Advice on Considering Spinal Fusion (Jay Berry, platform)

Health Insurance Regulation and Impact on Children: Evidence vs. Fiction (Morgan Crossman & Olivia Lindly, poster)

Medical Trauma and Resilience for Children with Special Healthcare Needs: Child and Parent Perspectives on Coping with Inflammatory Bowel Disease (Molly Easterlin, poster)

Child and Parent Perspectives on the Acceptability of Virtual Reality to Mitigate Medical Trauma in a Pediatric Infusion Center (Molly Easterlin, platform)

Characteristics and outcomes of emergency department visits in a comprehensive care program for children with medical complexity (Henry Zapata, platform)

Transition of Hospital Type Use for Adolescents and Young Adults who have Complex Chronic Conditions (Ashley Jenkins, platform)

Healthcare Utilization and Spending for Children with Mental Health Conditions in Medicaid (Stephanie Doupnik, poster)

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