News & Events

News, Events, Webinars & Conference Information from Across Our Network


An Almost Complete List of Services Used by Families and Children with Special Health Care Needs - January 2020

Children with chronic and complex health conditions require a wide array of health care and other services. A new list out of the Lucile Packard Foundation developed by Edward L. Schor, MD classifies services that may be useful to children with special health care needs and their families. This list details family, health, community services and more! Click here to see the full list


Family Burden and Medical Complexity: Wrestling with the Meaning and Impact of Commonly Used Terms - January 2020

Meg Comeau, MHA, a parent of a young adult with special needs and a professional in the CSHCN field, suggests that terms such as “family burden” and “medical complexity” are viewed differently by parents and professionals. This difference can impact on how services are provided. She proposes reconciling those views, with the goal of creating a better system of care in this new brief. Read the full brief here