Welcome to the CYSHCNet blog. Here we share stories and perspectives of children and youth with special health care needs (CYSHCN), their families and caregivers, and our academic researchers. Interested in sharing your story? Email us. ​​

  • New Journal of Pediatrics Study Examines Colorado Medicaid’s Paid Family Caregiving Program

    Colorado allows parents to be employed as certified nursing assistants (CNAs) for their children. A new network study compared paid family CNAs providing skilled care to children with medical complexities to non-family CNAs, looking at retention and hospitalization rates. It’s a model we speculate could address workforce shortages while providing income to family caregivers. This […]

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  • Lessons in Humility: Building a Foundation for a Regional Network of Complex Care

    A Conversation with Neal deJong, MD, MPH (University of North Carolina Division of General Pediatrics) and David Ming, MD (Duke University Departments of Medicine, Pediatrics, and Population Health Sciences) It was supposed to be a one-time regional convening in North Carolina. But the pandemic hit, so the one-time convening became a three-part virtual meeting, attracting […]

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  • Family Partner Spotlight

    Advice for Considering Culture from Elisa Aucancela Meet Elisa! She’s personally been a family partner on two CYSHCNet research projects and partners with us through El Grupo Vida. As executive director, Elisa oversees this network of Hispanic/Latino parents.  The nonprofit was formed to provide mutual support for people with disabilities or special needs, including their […]

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