Welcome to the CYSHCNet blog. Here we share stories and perspectives of children and youth with special health care needs (CYSHCN), their families and caregivers, and our academic researchers. Interested in sharing your story? Email us. ​​

  • Family Partner Spotlight

    Advice for Considering Culture from Elisa Aucancela Meet Elisa! She’s personally been a family partner on two CYSHCNet research projects and partners with us through El Grupo Vida. As executive director, Elisa oversees this network of Hispanic/Latino parents.  The nonprofit was formed to provide mutual support for people with disabilities or special needs, including their […]

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  • Member Spotlight

    Katie Freundlich, MD, Trusts There’s a Better Way How She Aims to Help CYSHCNet Move its Research Forward At age five, Katie Freundlich knew she’d be a pediatrician. She tried to consider other occupations as she aged. But when you know, you know. Today, Freundlich is an assistant professor of clinical pediatrics at Monroe Carell […]

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  • New Learning Platform Provides Guidance on Implementing the National Research Agenda 

    It’s exciting to see more and more research focusing on improving health systems for children and youth with special health care needs. To ensure research and projects are well-coordinated, we developed an interactive learning platform based on our national research agenda on health systems. The online learning platform describes and provides guidance on how to […]

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