Protected: Annual Meeting Recording and Documents
There is no excerpt because this is a protected post.
Research spotlight: Do caregivers of young people with asthma feel discriminated against?
CYSHCNet researcher Stefanie Ames, MD, presents on social determinants of health and disparities for young people with asthma. Here’s the presentation on YouTube!
What Does True Family Partnership in Research Look Like?
Nikki Montgomery shares her experience as program and communications manager of Family Voices AND as a parent of a medically-complex child. An expert in plain language and health literacy, Nikki is passionate about helping families and researchers come together to engage in work that matters. Tell us about the goals you have in the role […]
New Journal of Pediatrics Study Examines Colorado Medicaid’s Paid Family Caregiving Program
Colorado allows parents to be employed as certified nursing assistants (CNAs) for their children. A new network study compared paid family CNAs providing skilled care to children with medical complexities to non-family CNAs, looking at retention and hospitalization rates. It’s a model we speculate could address workforce shortages while providing income to family caregivers. This […]
Lessons in Humility: Building a Foundation for a Regional Network of Complex Care
A Conversation with Neal deJong, MD, MPH (University of North Carolina Division of General Pediatrics) and David Ming, MD (Duke University Departments of Medicine, Pediatrics, and Population Health Sciences) It was supposed to be a one-time regional convening in North Carolina. But the pandemic hit, so the one-time convening became a three-part virtual meeting, attracting […]
Family Partner Spotlight
Advice for Considering Culture from Elisa Aucancela Meet Elisa! She’s personally been a family partner on two CYSHCNet research projects and partners with us through El Grupo Vida. As executive director, Elisa oversees this network of Hispanic/Latino parents. The nonprofit was formed to provide mutual support for people with disabilities or special needs, including their […]