Executive Committee


 

Stille2Christopher Stille, MD, MPH, Network Director and NCC Director
Professor of Pediatrics at University of Colorado Denver (UCD) and Section Head, General Academic Pediatrics, Children’s Hospital Colorado (CHCO)

Dr. Stille is a general pediatrician with over 20 years of experience with CYSHCN. He practices primary care and outpatient complex care at Children’s Hospital Colorado. He has conducted primary care network research since 1999, with local networks as well as the national Pediatric Research in Office Settings (PROS) network. His major research interest is bringing researchers and practitioners together to improve systems of care for CYSHCN, and improving partnerships in the “medical neighborhood” between primary care practitioners, specialists and families. He is on several national working groups to improve care for patients and families, including at the American Academy of Pediatrics and the National Quality Forum.

Jay Berry, MD, MPH, Associate Network Director and CRE DirectorJay Berry
Assistant Professor of Pediatrics, Boston Children’s Hospital, Harvard Medical School

As a general pediatrician and hospitalist, Dr. Berry’s 15 years of clinical, quality improvement initiatives, health services research, and policy work have focused on optimizing health outcomes and systems for children with medical complexity through proactive care planning, perioperative care coordination, integrated health information management, high quality discharge planning, and use of home and post-acute care services. His work has been published in JAMA, BMJ, and PLoS Medicine and has been awarded nationally by the Center for Integration of Medicine and Innovative Technology, the Agency for Healthcare Research and Quality, and Academy Health.

Wells

Nora Wells, Network Director of Patient and Family Engagement, Family Voices

Ms. Wells is Executive Director of Family Voices’ (FV) National Office, an internationally renowned entity striving to achieve family-centered care for all CYSHCN. FV provides families with resources and support to make informed decisions, advocate for improved public and private policies, build partnerships among families and professionals, and be a trusted resource on health care. In her 26 years with FV, Ms. Wells has trained and offered technical assistance to family leaders and professionals throughout the country, testified in Congress, and collaborated on advocacy, clinical, policy, and research projects with numerous pediatric clinicians and federal and private agencies. Ms. Wells and Family Voices will ensure active partnership with families at all Network levels.

HooverClarissa Hoover, MPH, Executive Committee Member,
Research Coordinator at Family Voices

Ms. Hoover started advocating for patients, families, and quality healthcare shortly after her daughter’s diagnosis with cystic fibrosis in 2005. She served first as family faculty for residents and nursing students and later joined or co-founded three Advisory Councils supporting family-centered care at the University of New Mexico Hospital and Health Sciences Center. She received the Young Maternal-Child Health Professional Award from the Association of Maternal-Child Health Programs in 2015 and completed the Georgetown University Leadership Institute for Cultural Diversity and Linguistic Competence in 2015. Ms. Hoover has given presentations on patient and family perspectives at Association of Maternal-Child Health Programs conferences. Her professional interests center on patient and family roles in family-centered care and community based research, and on patient and family engagement and capacity building.

PerrinJames Perrin, MD
Professor of Pediatrics at Harvard Medical School, founder of Massachusetts General Hospital for Children (MGHfC) Center for Child and Adolescent Health Policy

Dr. Perrin is recent past President (2014) of the American Academy of Pediatrics and formerly led the Autism Intervention Research Network on Physical Health. His early work on childhood chronic conditions began with leadership of the Vanderbilt study of children with chronic conditions and their families. An elected member of the National Academy of Medicine, he has served on many NAM panels on children’s disability. Founding editor of the journal, Academic Pediatrics, he has over 200 peer reviewed publications on CYSHCN, including 4 randomized clinical trials on children (e.g., disease education and stress management for children with asthma; payment model on physician practice behavior; EHR-decision support for children with ADHD).

ChungPaul Chung, MD, MS
Professor of Pediatrics and Health Policy & Management at UCLA, Chief of General Pediatrics at UCLA Mattel Children’s Hospital

Dr. Chung is director of Health Services Research at the UCLA Children’s Discovery & Innovation Institute, Chair of the Pediatric Policy Council, and incoming President Elect of the Academic Pediatric Association. His research broadly addresses medically and/or socially vulnerable children and childhood determinants of adult health. Specific interests include primary care system redesign, children with medical complexity, early childhood development, educational environments, youth incarceration, childhood adversity and poverty, health behaviors, family leave, and child health policy. His work has been funded by NIH, CDC, HRSA, RWJF, and other public and private agencies.

KuhlthauKaren Kuhlthau, PhD, Director Research Education   Associate Professor of Pediatrics, MassGeneral Hospital for Children, Harvard Medical School

Dr. Kuhlthau is a nationally-recognized, health services researcher with a background in Sociology and Demography. Her 100 publications focus mostly on CYSHCN. She has strong quantitative and qualitative methodological skills, is senior faculty at the Harvard-wide Pediatric Health Services Fellowship, and received the Excellence in Mentoring Award from Harvard Medical School. She has been PI of the HRSA-funded Autism Intervention Research Network on Physical Health for the past two years. She has strong experience involving families in multi-site research studies.

SheltonCharlene Shelton, RN, MPA, PhD, Program Manager National Coordinating Center, University of Colorado Denver, Adult and Child Consortium for Health Outcomes Research and Delivery Science (ACCORDS)

Dr. Shelton manages the National Coordinating Center’ administrative arm. She is a former critical care nurse with expertise in health literacy, social determinants of health, and underserved populations. She is a medical sociologist with a masters degree in policy and nonprofit management. In her spare time she teaches sociology at Metropolitan State University of Denver.