Collectively serving CYSHCN from all 50 U.S. states, our 9 CYSHCNet Sites have deep frontline clinical care experiences with 300,000 active CYSHCN patients across the care continuum with over 1,500,000 outpatient; 225,000 emergency department visits; and 50,000 inpatient annual visits with strong diversity in types and numbers of chronic conditions, healthcare needs, functional status, age, race/ethnicity, income, and insurance. All sites offer a breadth of primary, specialty, and surgical care as well as therapy, social work, case management, patient and family education, family navigation, and other health services for CYSHCN. All sites have a medical home for CYSHCN with variation in size, setting, structure, personnel, care processes, and medical complexity of patients served. CYSHCN researchers across the 9 Sites are proficient in myriad designs including epidemiologic, interventional, cross-sectional, longitudinal, qualitative, quantitative, retrospective, and prospective. CYSHCN Site researchers are also experienced with case-control, time series, clinical trials (cluster, controlled, pragmatic, stepped-wedge etc.), difference-in-difference, focus group, interview, survey, systematic review, and other research methods.
Nora Wells, MsEd and Clarissa Hoover, MPH (Site Principal Investigator)
Family Voices is a national, nonprofit, family-led organization promoting quality health care for all children and youth, particularly those with special health care needs. Working with family leaders and professional partners at the local, state, regional, and national levels since 1992, Family Voices has brought a respected family perspective to improving health care programs, policies, and research, and ensuring that health care systems include, listen to, and honor the voices of families.
American Family Children’s Hospital
University of Wisconsin-Madison
Ryan Coller, MD, MPH (Site Principal Investigator)
Dr. Coller is Assistant Professor of Pediatrics, Chief of Hospital Medicine at the University of Wisconsin School of Medicine and Public Health, and an investigator at the University of Wisconsin Health Innovation Program. He is co-founder and co-director of the UW Pediatric Complex Care Program – a medical home for children with medical complexity. He completed medical school at Johns Hopkins University, residency and chief residency at Mattel Children’s Hospital UCLA , and fellowship through the Maternal and Child Health Bureau’s Child and Family Health Leadership Training Program at UCLA.
Dr. Coller’s research focuses on eliminating hospitalizations for children with medical complexity. His research program’s long-term goal is to improve patient and family well-being by creating high-quality, safe, seamless experiences across the healthcare continuum. Dr. Coller is a member of the Editorial Board of Pediatrics, the National Quality Forum’s Patient Experience and Function standing committee, and co-author of Child Health: a Population Perspective.
Ann & Robert H. Lurie Children’s Hospital of Chicago
Rishi Agrawal, MD, MPH (Site Principal Investigator)
Rishi Agrawal, MD, MPH is an Associate Professor of Pediatrics at Northwestern University Feinberg School of Medicine and is a pediatric hospitalist at Lurie and La Rabida Children’s Hospital in Chicago. He is co-chair of the Academic Pediatric Association Complex Care Special Interest Group and has a research interest in Children with Medical Complexity.
Boston Children’s Hospital Mass. General Hospital for Children
Harvard Medical School
Jay Berry, MD, MPH (Site Principal Investigator)
As a general pediatrician and hospitalist, Dr. Berry’s 15 years of clinical, quality improvement initiatives, health services research, and policy work have focused on optimizing health outcomes and systems for children with medical complexity through proactive care planning, perioperative care coordination, integrated health information management, high quality discharge planning, and use of home and post-acute care services. His work has been published in JAMA, BMJ, and PLoS Medicine and has been awarded nationally by the Center for Integration of Medicine and Innovative Technology, the Agency for Healthcare Research and Quality, and Academy Health.
Children’s Hospital Colorado
University of Colorado
Chris Stille, MD, MPH (Site Principal Investigator)
Dr. Stille is a general pediatrician with over 20 years of experience with CYSHCN. He practices primary care and outpatient complex care at Children’s Hospital Colorado. He has conducted primary care network research since 1999, with local networks as well as the national Pediatric Research in Office Settings (PROS) network. His major research interest is bringing researchers and practitioners together to improve systems of care for CYSHCN, and improving partnerships in the “medical neighborhood” between primary care practitioners, specialists and families. He is on several national working groups to improve care for patients and families, including at the American Academy of Pediatrics and the National Quality Forum.
Children’s Memorial Hermann (Houston Children’s)
University of Texas
Ricardo Mosquera, MD (Site Principal Investigator)
Dr. Ricardo A. Mosquera is an Associate Professor of Pediatrics and Pulmonary attending at Children’s Memorial Hermann Hospital and serves as medical director of the High Risk Children’s program (complex care program) at McGovern Medical School at UTHealth. Dr. Mosquera’s interest is to develop, assess, refine, and promote advances in care for children with medical complexity (CMC). He conducted the first randomized clinical trial of an enhanced medical home for children with medical complexity. Published in JAMA, the trial demonstrated that comprehensive care delivered by the same complex care team who follow the patients in all settings, achieved the triple aim of improved healthcare outcomes (hospital utilization was reduced 47-69%), cost effectiveness (total clinic and hospital costs were reduced by $10 258 per child-year) and, improved patient experience of care (increased patient satisfaction).
Dr. Mosquera and his team are developing a complex care fellowship program and have several ongoing clinical trials of health service interventions for CMC. Dr. Mosquera’s work is positioned to be rigorously tested and disseminated to multiple network sites.
Monroe Carell Jr. Children’s Hospital at Vanderbilt
David Hall, MD (Site Principal Investigator)
Dr. Hall is Professor of Clinical Pediatrics at Vanderbilt University School of Medicine and the Section Head and founder of the Program for Children with Medically Complex Needs at Monroe Carell, Jr. Children’s Hospital. Prior to coming to Vanderbilt, he directed the Complex Care Center at Cincinnati Children’s Hospital Medical Center.
Dr. Hall is a general pediatrician and former children’s hospital medical director who saw first-hand the need for improvement in the care of children with medical complexity. He became an early advocate for this population and has been involved in health services research, studying their impact on health care utilization, re-admissions, and children’s hospitals. In addition, he is a clinician and educator who provides direct care to children with medically complex illness on a daily basis.
Oishei Children’s Hospital of Buffalo
University of Buffalo
Buffalo, New York
Dennis Kuo, MD, MHS (Site Principal Investigator)
Dr. Dennis Kuo is a primary care pediatrician with a special interest in children with disabilities and medical complexity. He is Associate Professor of Pediatrics at the University at Buffalo, Division Chief of General Pediatrics at UBMD Pediatrics and an attending physician at Oishei Children’s Hospital in Buffalo, NY. His academic work has focused on family-centered care and family-identified health care needs of children with medical complexity, and more recently has evolved to care coordination design and health care system reform.
Dr. Kuo’s prior work funded by Health Services and Resources Administration includes the Arkansas System of Care State Implementation Grant for Children with Special Health Care Needs, the Maternal and Child Health Research grant, and the Early Childhood Comprehensive Systems project. He is the current Chair of the American Academy of Pediatrics Council on Children With Disabilities (COCWD), following six years of serving on the Executive Committee of the COCWD, and he is a member of the Board of Directors of Family Voices.
UCLA Mattel Children’s Hospital
University of California, Los Angeles
Los Angeles, California
Paul Chung, MD, MS (Site Principal Investigator)
Dr. Chung is director of Health Services Research at the UCLA Children’s Discovery & Innovation Institute, Chair of the Pediatric Policy Council, and incoming President Elect of the Academic Pediatric Association. His research broadly addresses medically and/or socially vulnerable children and childhood determinants of adult health. Specific interests include primary care system redesign, children with medical complexity, early childhood development, educational environments, youth incarceration, childhood adversity and poverty, health behaviors, family leave, and child health policy. His work has been funded by NIH, CDC, HRSA, RWJF, and other public and private agencies.