The U.S. health system, historically, has not been well equipped to serve children and youth with special health care needs (CYSHCN). Network research holds great promise for improving health systems for CYSHCN in a way that enables learning across multiple sites and systems and creation and application of new knowledge that is nationally generalizable. In 2017, theU.S. Maternal and Child Health Bureau, Health Resources and Services Administration entered into a Cooperative Agreement to establish a national Health Systems Research Network for CYSHCN to promote and conduct this research.
Our 9 CYSHCNet Sites have deep frontline clinical care experiences with 300,000 active CYSHCN patients across the care continuum with over 1,500,000 outpatient; 225,000 emergency department visits; and 50,000 inpatient annual visits. CYSHCN researchers across the 9 Sites are proficient in myriad designs and are also experienced with case-control, time series, clinical trials, difference-in-difference, focus group, interview, survey, systematic review, and other research methods.