The CYSHCNet collectively serves children and youth with special health care needs across all 50 U.S. states.

Our 13 CYSHCNet Sites offer a breadth of primary, specialty, and surgical care as well as therapy, social work, case management, patient and family education, family navigation, and other health services for CYSHCN.

All sites have a medical home for CYSHCN with variation in size, setting, structure, personnel, care processes, and medical complexity of patients served.


A family-centered approach that utilizes the valuable insights of family caregivers, young adults, and youth enhances the research process and outcomes for CYSHCN and their families.


CYSHCNet was founded in 2017 as a cooperative agreement with HRSA’s Maternal and Child Health Bureau to research health systems that support CYSHCN, their families, and providers.

National Research Agenda

Below is a video abstract by Dr Ryan Coller, who highlights the rationale behind the creation of the National Research Agenda, the process behind defining key priority research areas and a summary of the six suggested sub-topics for future research.

An important part of our work is dedicated to supporting the next generation of CYSHCN health systems researchers, and all of our work includes families and youth as partners in each project.

Chris Stille MD, MPH
Director, CYSHCNet

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